Mandi75's Journey with Inflammatory Breast Cancer

Patient: Breast Cancer > Inflammatory Breast Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 41, Stage IIIC, HER2 Positive: Yes, ER Positive: No, PR Positive: No

  1. 1
    • Mandi75
    • Experience with Inflammatory Breast Ca...
    almost 5 years ago
    Mandi75's Avatar

    Diagnosed

    Oh No

    Was diagnosed Feb 2nd of this yr. Found a lump along with skin changes and redness on my own. Been a roller coaster ever since.

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  2. 2
    • Mandi75
    • Experience with Inflammatory Breast Ca...
    almost 5 years ago
    Mandi75's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have completed 3 rounds of chemo that include Taxotere, Carboplatin, and Herceptin. May 24th is the last treatment before surgery.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • Mandi75
    • Experience with Inflammatory Breast Ca...
    almost 5 years ago
    Mandi75's Avatar

    Bladder problems

    Side Effects

    With each of the three chemo treatments, been having bladder irritation and infections.

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  4. 4
    • Mandi75
    • Experience with Inflammatory Breast Ca...
    almost 5 years ago
    Mandi75's Avatar

    Depression/Anxiety

    Side Effects

    I am single and live alone. So any time I have to be alone is very hard on me now. My parents, brother, and sister-in-law are three hours away. Mom comes to stay some and I go there some, but have had one week of alone time each treatment. Terrible depression happens right after treatment, then again when I am alone.

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  5. 5
    • Mandi75
    • Experience with Inflammatory Breast Ca...
    almost 5 years ago
    Mandi75's Avatar

    Diarrhea

    Side Effects

    This diarrhea is terrible when it hits. Likes colonspasm. Happens over and over on a couple of occasions.

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  6. 6
    • Mandi75
    • Experience with Inflammatory Breast Ca...
    almost 5 years ago
    Mandi75's Avatar

    Hair loss (alopecia)

    Side Effects

    I miss my long blonde hair! Had long hair since about age 15.

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  7. 7
    • Mandi75
    • Experience with Inflammatory Breast Ca...
    almost 5 years ago
    Mandi75's Avatar

    Nausea/Vomiting

    Side Effects

    The anti nausea meds only go so far. Generally prevents throwing up. It have a few times.

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  8. 8
    • Mandi75
    • Experience with Inflammatory Breast Ca...
    almost 5 years ago
    Mandi75's Avatar

    Finished treatment

    Celebration

    Finished phase one of my cancer treatment regiment, the chemo, today. Woohoo! Mastectomy surgery will be June 19th.

    1 Comment
  9. 9
    • Mandi75
    • Experience with Inflammatory Breast Ca...
    over 4 years ago
    Mandi75's Avatar

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  10. 10
    • Mandi75
    • Experience with Inflammatory Breast Ca...
    over 4 years ago
    Mandi75's Avatar

    External radiation

    Radiation

    Finished 20 radiation treatments. 10 more to go. Last radiation treatment will be Septmeber 17th. The worst part for me is the days when I have to be prepped for treatment and in the awkward position more than 10 or so minutes. My arm on my treated side goes numb and throbs and hurts. The arm on the other side, right, is in a kink and trembles. Then, my neck is in a kink too. My skin is doing well so far. Looks like I have a slight sun tan. Hurts a little when I try to sleep on that side and bra a little uncomfortable.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment