rbd100's Journey with Invasive Lobular Carcinoma

Survivor: Breast Cancer > Invasive Lobular Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 6 years ago, Male, Age: 39, Stage I, HER2 Positive: Don't Know, ER Positive: Yes, PR Positive: Yes

  1. 1
    • rbd100
    • Experience with Invasive Lobular Carcin...
    about 5 years ago
    rbd100's Avatar

    Diagnosed

    Oh No

    I was first told that the cancer was only LCIS and would only need a lumpectomy.

    0 Comments
  2. 2
    • rbd100
    • Experience with Invasive Lobular Carcin...
    about 5 years ago
    rbd100's Avatar

    Lumpectomy

    Procedure or Surgery

    The lumpectomy was fine. I was sore and swollen but it didn't take long to feel better.

    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • rbd100
    • Experience with Invasive Lobular Carcin...
    about 5 years ago
    rbd100's Avatar

    Sentinel lymph node biopsy

    Procedure or Surgery

    The histology came back as invasive cancer. Lobular carcinoma stage one. I had the Sentinel node biopsy and learned that it had not spread to the lymph nodes. I have a lot of numbness and nerve damage from that surgery still. I have to be careful shaving my under arm!

    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • rbd100
    • Experience with Invasive Lobular Carcin...
    about 5 years ago
    rbd100's Avatar

    External radiation

    Radiation

    You don't think that radiation therapy could make you so tired but I had the worst fatigue was unrelieved by rest. I couldn't walk up the stairs without being winded and I was always an active person. At the end, chunks of skin fell off and the fatigue lasted several months after treatment ended. Also, they didn't warn me about the tatoos. They said they would mark me so when she jabbed me with that tatoo gun I was shocked.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. 5
    • rbd100
    • Experience with Invasive Lobular Carcin...
    about 5 years ago
    rbd100's Avatar

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • rbd100
    • Experience with Invasive Lobular Carcin...
    about 5 years ago
    rbd100's Avatar

    Hormone therapy

    Drug or Chemo Therapy

    Oh Tamoxifen, how I hate thee. I am 34 years old and having hot flashes, night sweats and menstrual changes. I recently had a pelvic ultrasound that showed my uterine lining was thickened. I have some tests coming up for that but it could be treatment related. The Tamoxifen increases your risk of uterine cancer. That would be my luck.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  7. 7
    • rbd100
    • Experience with Invasive Lobular Carcin...
    about 5 years ago
    rbd100's Avatar

    Endometrial hyperplasia

    Oh No

    Going to have a hysterectomy. Not terrible news. I'm done with my uterus anyway!!

    0 Comments
  8. 8
    • rbd100
    • Experience with Invasive Lobular Carcin...
    almost 5 years ago
    rbd100's Avatar

    Surgery

    Procedure or Surgery

    Had a vaginal hysterectomy. There is minimal pelvic pain but the gas pain was severe and lasted many days after. It was terrible and unrelieved by anything!

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  9. 9
    • rbd100
    • Experience with Invasive Lobular Carcin...
    almost 5 years ago
    rbd100's Avatar

    Happiness!

    Celebration

    After struggling with cancer and treatments while in nursing school I have finally achieved what I set out to do. I graduated in May and have been working in an ICU for a month now and I absolutely love the challenge. Cancer didn't win. Nanny nanny boo boo.

    1 Comment