TXHills' Journey with Invasive Lobular Carcinoma

Patient: Breast Cancer > Invasive Lobular Carcinoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 10 years ago, Female, Age: 61, Stage IV, HER2 Positive: No, ER Positive: Yes, PR Positive: Don't Know

  1. 1
    • TXHills
    • Experience with Invasive Lobular Carci...
    over 7 years ago
    TXHills' Avatar

    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  2. 2
    • TXHills
    • Experience with Invasive Lobular Carci...
    over 7 years ago
    TXHills' Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • TXHills
    • Experience with Invasive Lobular Carci...
    over 7 years ago
    TXHills' Avatar

    Moderately high risk of recurrence, small amount in sentinel lymph node.

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  4. 4
    • TXHills
    • Experience with Invasive Lobular Carci...
    over 7 years ago
    TXHills' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. 5
    • TXHills
    • Experience with Invasive Lobular Carci...
    over 7 years ago
    TXHills' Avatar

    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Disagree
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. 6
    • TXHills
    • Experience with Invasive Lobular Carci...
    over 7 years ago
    TXHills' Avatar

    Hormone therapy

    Drug or Chemo Therapy

    Four years of anastrozole, which is generic Arimidex. After 9 UTI's in 14 months, I finally went on Vagi-Fem, which stopped them, for the most part.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  7. 7
    • TXHills
    • Experience with Invasive Lobular Carci...
    about 6 years ago
    TXHills' Avatar

    Cancer has spread/Metastasized

    Oh No

    At a scheduled checkup, I mentioned some new symptoms. A repeat mammo and breast ultrasound were clear, but PET scan showed multiple suspicious areas on my liver. PET scans rarely have false positives for liver mets, especially given my symptoms and elevated liver enzymes. Awaiting a CT-guided liver biopsy, which is maddeningly hard to schedule in a timely manner.

    5 Comments
  8. 8
    • TXHills
    • Experience with Invasive Lobular Carci...
    about 6 years ago
    TXHills' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I'm starting chemo. Again. This cancer is aggressive and we must be, too. Metastatic breast cancer feels like Whack A Mole. It's only for certain in my liver, at this time.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  9. 9
    • TXHills
    • Experience with Invasive Lobular Carci...
    almost 6 years ago
    TXHills' Avatar

    Hormone therapy

    Drug or Chemo Therapy

    Done with chemo, with good results on the PET (no areas of active uptake) and CT (some of the tumors have shrunk) scans. Liver enzymes are back to normal, so now we start with fulvestrant. And continue to monitor tumor markers, which are dropping still.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  10. 10
    • TXHills
    • Experience with Invasive Lobular Carci...
    over 5 years ago
    TXHills' Avatar

    Cancer is back/Recurred

    Oh No

    My tumors markers, which had been dropping steadily for a few months, and we're both in the normal range, just spiked. The one I know about tripled in only four weeks, going from below 30 to 81. Plus, my abdominal pain and bloating have returned and I have lost two pounds in two weeks, without trying. PET scan tomorrow will hopefully show us what is happening and we can change my treatment plan. Clearly, the hormonal therapy alone is not enough. I'm afraid it's back to chemo. Again.

    0 Comments
  11. 11
    • TXHills
    • Experience with Invasive Lobular Carci...
    over 5 years ago
    TXHills' Avatar

    Cancer is back/Recurred

    Oh No

    PET scan last week confirmed the liver tumors are active again, especially in the right lobe. But they stil seem to be only in the liver. Abdominal symptoms of pain and bloating are getting gradually worse and I've lost about 3 pounds again. Will see oncologist this week, perhaps start chemo again. Also waiting to hear if I'm a candidate for SIRT with top doc in Chicago. Doubt that will pan out. This chemo has a much smaller chance of being helpful, but it may allay some of my symptoms, for a while. Cancer sucks.

    2 Comments
  12. 12
    • TXHills
    • Experience with Invasive Lobular Carci...
    over 5 years ago
    TXHills' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Just started Aromasin with Afinitor. Now, we monitor for side effects to see how I tolerate it. And we see if it's slowing down the cancer, which has invaded most of the right lobe of my liver.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    4 Comments