phrannie's Journey with Undifferentiated Carcinoma, Nasophary...

Patient: Head & Neck/Throat Cancer > Nasopharyngeal Cancer > Nasopharyngeal Carcinoma > Undifferentiated Carcinoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 6 years ago, Female, Age: 68

  1. 1
    • phrannie
    • Experience with Undifferentiated Carc...
    over 6 years ago
    phrannie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had three Cisplatin treatments in conjunction with radiation and seemed to do ok, a little sick, a lot tired, and weightloss....still "ok". After rads were over I had 3 Cisplatin/5FU fanny pack. 5FU kicked my butt. Sick, hamburger mouth, unable to take in any nutrition or hydration without a feeding tube.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  2. 2
    • phrannie
    • Experience with Undifferentiated Carc...
    over 6 years ago
    phrannie's Avatar

    External radiation

    Radiation

    I've had rads twice....the first time it was along with chemo. My neck was burned, as well as my mouth...no taste buds, and no saliva. The taste and the saliva stayed gone for 3 years. Then I had a recurrence and had rads to the nodes under my collar bone...those rads had very little effect on my daily life.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  3. 3
    • phrannie
    • Experience with Undifferentiated Carc...
    over 3 years ago
    phrannie's Avatar

    Mouth sores

    Side Effects

    If I could have chosen more side effects from that list I would have...dry mouth, weight loss (79 lbs at the end of treatment), nausea, incontinence, peripheral neuropathy, hair loss, etc etc. However, strange as it may seem....the mouth sores were the most debilitating.

    0 Comments
  4. 4
    • phrannie
    • Experience with Undifferentiated Carc...
    over 3 years ago
    phrannie's Avatar

    Finished treatment

    Celebration

    What a great day!! I am in the new normal now....

    0 Comments
  5. 5
    • phrannie
    • Experience with Undifferentiated Carc...
    over 3 years ago
    phrannie's Avatar

    Body part/function

    Loss

    Little left of my ability to taste, and saliva is pretty much a thing of the past....but I'm alive!!

    0 Comments
  6. 6
    • phrannie
    • Experience with Undifferentiated Carc...
    over 2 years ago
    phrannie's Avatar

    Surgery

    Procedure or Surgery

    Neck dissection on 11/13/2015. Neck is a little stiff, but did not lose the ability to raise my arm....THAT was a plus!!!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. 7
    • phrannie
    • Experience with Undifferentiated Carc...
    8 months ago
    phrannie's Avatar

    It's now the end of 2017, and I'm being treated for my 3rd round of HNC

    Other Care

    Scan in April showed nodules in my lungs, and a tumor in the scalene muscle in my neck. Because they were doing a wait and see on my lungs, no radiation this time....and because the scalene muscle contains the nerve that would run the right side of my diaphragm, no surgery was prescribed either. I started Keytruda the end of June, and had my 10th treatment last Monday. I've had two scans, and so far I am stable. If and when the Keytruda quits working, I'll be looking into clinical trials.

    0 Comments
  8. 8
    • phrannie
    • Experience with Undifferentiated Carc...
    8 months ago
    phrannie's Avatar

    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  9. 9
    • phrannie
    • Experience with Undifferentiated Carc...
    8 months ago
    phrannie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments