phrannie's Journey with Undifferentiated Carcinoma, Nasophary...

Patient: Head & Neck/Throat Cancer > Nasopharyngeal Cancer > Nasopharyngeal Carcinoma > Undifferentiated Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 5 years ago, Female, Age: 66, Stage III

  1. 1
    • phrannie
    • Experience with Undifferentiated Carc...
    almost 5 years ago
    phrannie's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had three Cisplatin treatments in conjunction with radiation and seemed to do ok, a little sick, a lot tired, and weightloss....still "ok". After rads were over I had 3 Cisplatin/5FU fanny pack. 5FU kicked my butt. Sick, hamburger mouth, unable to take in any nutrition or hydration without a feeding tube.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • phrannie
    • Experience with Undifferentiated Carc...
    almost 5 years ago
    phrannie's Avatar

    External radiation

    Radiation

    I've had rads twice....the first time it was along with chemo. My neck was burned, as well as my mouth...no taste buds, and no saliva. The taste and the saliva stayed gone for 3 years. Then I had a recurrence and had rads to the nodes under my collar bone...those rads had very little effect on my daily life.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  3. 3
    • phrannie
    • Experience with Undifferentiated Carc...
    almost 2 years ago
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    Mouth sores

    Side Effects

    If I could have chosen more side effects from that list I would have...dry mouth, weight loss (79 lbs at the end of treatment), nausea, incontinence, peripheral neuropathy, hair loss, etc etc. However, strange as it may seem....the mouth sores were the most debilitating.

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  4. 4
    • phrannie
    • Experience with Undifferentiated Carc...
    almost 2 years ago
    phrannie's Avatar

    Finished treatment

    Celebration

    What a great day!! I am in the new normal now....

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  5. 5
    • phrannie
    • Experience with Undifferentiated Carc...
    almost 2 years ago
    phrannie's Avatar

    Body part/function

    Loss

    Little left of my ability to taste, and saliva is pretty much a thing of the past....but I'm alive!!

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  6. 6
    • phrannie
    • Experience with Undifferentiated Carc...
    10 months ago
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    Surgery

    Procedure or Surgery

    Neck dissection on 11/13/2015. Neck is a little stiff, but did not lose the ability to raise my arm....THAT was a plus!!!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments