Pangea422's Journey with Colorectal (Colon) Cancer

Caregiver: Colorectal (Colon) Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 71, KRAS mutation positive: Yes, BRAF mutation positive: Yes, Stage IV

  1. 1
    • Pangea422
    • Experience with Colorectal (Colon) C...
    over 5 years ago
    Pangea422's Avatar

    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • Pangea422
    • Experience with Colorectal (Colon) C...
    over 5 years ago
    Pangea422's Avatar

    Health insurance issue

    Oh No

    Mom had the wrong type of insurance, so it didn't cover her colectomy surgery.

    0 Comments
  3. 3
    • Pangea422
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    Mom lost a lot of weight and never gained it back even months after the surgery.

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • Pangea422
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Money

    Oh No

    Started getting tons of bills from the doctors and hospitals in excess of $140,000 despite having "insurance."

    1 Comment
  5. 5
    • Pangea422
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Weight loss

    Side Effects

    Could never gain back weight after colectomy.

    4 Comments
  6. 6
    • Pangea422
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Problem with doctor

    Oh No

    We were referred to an oncologist but her administrative staff was terrible and she didn't even recommend a PET scan so we had to go find a new oncologist. Waste of time.

    0 Comments
  7. 7
    • Pangea422
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Tired for the first week after Oxaliplatin and Avastin IV. 2 weeks of oral Zeloda to follow. Then 1 rest week for a total 3-week cycle.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  8. 8
    • Pangea422
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Diarrhea

    Side Effects

    This person has yet to add any details about this experience.

    1 Comment
  9. 9
    • Pangea422
    • Experience with Colorectal (Colon) C...
    over 5 years ago
    Pangea422's Avatar

    Nausea/Vomiting

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    • Pangea422
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Swallowing problems

    Side Effects

    On her second cycle of chemo, my mom experienced the inability to control her tongue for about 30 minutes as well as her right hand.

    1 Comment
  11. 11
    • Pangea422
    • Experience with Colorectal (Colon) C...
    about 5 years ago
    Pangea422's Avatar

    Remission

    Celebration

    My mom just had a Petscan since starting treatment 3 1/2 months ago and the scan came back clean, meaning all the areas that were lit up before are no longer there! She was given the option to stop chemo, since she had such severe side effects, but doctor recommended a maintenance program, so she's still going to have Avastin infusion every 3 weeks, and take 2 pills of Xeloda a day for two weeks, then a week of rest. She feels better already, with this great news. She's stage IV, so doc says it's a matter of when it comes back, but I've heard stories of where it doesn't ever come back or it's taken years! Hopefully it never does. Thanks to everyone for their support on here!

    0 Comments
  12. 12
    • Pangea422
    • Experience with Colorectal (Colon) C...
    almost 4 years ago
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    Cancer is shrinking

    Celebration

    mom went to the doctor back in february 2013 expecting to get scheduled for another petscan. her tumor markers came back at 4.0, the lowest it's ever been and within "normal" range. she's happy and doctor said, let's not scan since she's doing so well!

    0 Comments