Cat's Journey with Multiple Myeloma

Patient: Multiple Myeloma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 65

  1. 1
    • Cat
    • Experience with Multiple Myeloma
    almost 5 years ago
    Cat's Avatar

    Surgery

    Procedure or Surgery

    Had groin pain found in X-ray 2in. Of femur gone. Went to Standford did surgery next day. They in lay terms scooped out bad area. Put in plate and screws. Am now walking with cane. No pain. Starting to exercise need to build muscles back up.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  2. 2
    • Cat
    • Experience with Multiple Myeloma
    almost 5 years ago
    Cat's Avatar

    Radiation

    Just finished 4weeks of radiation to femur. Had little side effects stomach felt funny, took probiotics that worked. Skin got a little red last week but that was all. Yeah now on to next step

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • Cat
    • Experience with Multiple Myeloma
    almost 5 years ago
    Cat's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Waiting to start zometa. Had teeth work done, that broke the bank! I'm still doing research don't understand to much about it yet. Also waiting to start Revlimd w decadron don't know about that also. Side affects are kinda scarey

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  4. 4
    • Cat
    • Experience with Multiple Myeloma
    over 4 years ago
    Cat's Avatar

    Procedure or Surgery

    2ed surgery to put rod in leg, 5weeks ago. Recovery is faster this time physically , mentally a little harder, just starting over.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • Cat
    • Experience with Multiple Myeloma
    almost 4 years ago
    Cat's Avatar

    Going to finish my chemo dex then see. Anyone out there?

    Decision Point

    Well, thought I was going to have a cell extraction, guess not. All my test came back in normal range even the first bone marrow test except the middle of my free gamma lite chain went from 7 to 16 and a half , I had stopped my chemo/dex for a month. I'm XXX they could have waited to do bone marrow biopsy and 20 vills oh blood tell they read my free gamma lite chain. Now the want a transplant NO I am not ready for that! I feel great I want to finish my revlimid and dex. Is there hope this has stressed me out more then I can say!

    1 Comment