holmstr5's Journey with Adrenal Cortical Cancer (Adrenal Cort...

Spouse/Partner: Adrenal Cortical Cancer (Adrenal Cortex Carcinoma)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 51

  1. 1
    • holmstr5
    • Experience with Adrenal Cortical Canc...
    almost 5 years ago
    holmstr5's Avatar

    Mitotane

    Drug or Chemo Therapy

    So far my wife has been tired from the Mitotane.

    Easy to Do: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  2. 2
    • holmstr5
    • Experience with Adrenal Cortical Canc...
    almost 5 years ago
    holmstr5's Avatar

    External radiation

    Radiation

    Just started radiation treatments.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    3 Comments
  3. 3
    • holmstr5
    • Experience with Adrenal Cortical Canc...
    almost 5 years ago
    holmstr5's Avatar

    Surgery

    Procedure or Surgery

    Surgery went ok. We were suprised when the pathology came back adrenal cancer.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  4. 4
    • holmstr5
    • Experience with Adrenal Cortical Canc...
    almost 5 years ago
    holmstr5's Avatar

    University of Michigan

    Other Care

    We are receiving great care at the University of Michigan. They have a whole program dedicated to treatment and research of adrenal cancer. They said they treat half of the adrenal cancer patients in the world here. We recomend checking into it. They also offer remote second opinions.

    0 Comments
  5. 5
    • holmstr5
    • Experience with Adrenal Cortical Canc...
    over 4 years ago
    holmstr5's Avatar

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments