dhtdiver's Journey:

Survivor: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Primary Central Nervous System (CNS) Lymphoma

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: almost 12 years ago, Male, Age: 75, Stage I

  1. 1
    • dhtdiver
    • Experience with Primary Central Nervo...
    almost 10 years ago
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    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • dhtdiver
    • Experience with Primary Central Nervo...
    almost 10 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    Also high intensity radiation.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • dhtdiver
    • Experience with Primary Central Nervo...
    almost 10 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    8 treatments with methotrexate. Each treatment (every 2 weeks) consisted of a 6 day hospital stay.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    • dhtdiver
    • Experience with Primary Central Nervo...
    almost 10 years ago
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    External radiation

    Radiation

    12 treatments..1 per day...each treatment was about 15 minutes total. Very focused, high intensity beam.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  5. 5
    • dhtdiver
    • Experience with Primary Central Nervo...
    almost 10 years ago
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    Kidney damage

    Side Effects

    After 8th chemo session. Took several weeks, but it cleared up naturally and kidneys are back to full function.

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  6. 6
    • dhtdiver
    • Experience with Primary Central Nervo...
    almost 10 years ago
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    Took several trips that we had to postpone.

    Celebration

    1st was CNS Lymphoma of the brain - malignant & inoperable. Very high potency chemo (MTX) and high beam radiation. 2nd was a recurrance of same lymphoma in my lower back. RCHOP21 and radiation. Both are gone & I'm here!

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  7. 7
    • dhtdiver
    • Experience with Primary Central Nervo...
    over 6 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  8. 8
    • dhtdiver
    • Experience with Primary Central Nervo...
    about 5 years ago
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    Anniversary

    Celebration

    I just got the results of my Semi-Annual MRI --Stable, no change, no enhancement. In other words: PERFECT!! This marks my 6th anniversary of remission. With my particular DLBCNHL, studies show that after 2 years of remission, you have the same life expectancy as anyone else in your age group!!! :-)

    2 Comments