mom3b1g1969's Journey:

Patient: Breast Cancer

Patient Info: Diagnosed: almost 5 years ago, Female, Age: 47

  1. 1
    almost 5 years ago
    mom3b1g1969's Avatar

    Diagnosed

    Oh No

    Just diagnosed on Friday, April 13. I (and my partner and my mom) will meet with the surgeon tomorrow to learn more and find out whatever it is I need to know. The doc at the breast center says it is tiny area. I am really scared as I have 4 children and was also just recently diagnosed with fibromyalgia and Lupus and have been diabetic for 18 years.

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  2. 2
    almost 5 years ago
    mom3b1g1969's Avatar

    Decision Point

    Due to having Lupus, I cannot have radiation. So a lumpectomy without radiation leaves me with about a 40% chance of recurrence. Therefore, I will be having a simple mastectomy. This will leave me with an almost 0% chance of recurrence. I am also NOT a candidate for breast reconstruction due to my lupus and diabetes. Therefore, I will have just a prosthesis in my bra.

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  3. 3
    almost 5 years ago
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    Sentinel lymph node biopsy

    Procedure or Surgery

    The anxiousness of not really knowing what this procedure involved was the worst of it. It was really quite simple. The actual removal of lymph nodes did not occur until my mastectomy surgery a bit later. 3 nodes were removed.....all cancer free!!!!!

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    almost 5 years ago
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    Mastectomy

    Procedure or Surgery

    I did well before the surgery. It was my family that cried when I went in. I just kept saying to myself that once the breast is gone all will be well again. Tried to remain positive even tho I was hiding my fear. The surgery took 2 hours and I was in recovery for about an hour. I didn't have any pain but my mouth was so very dry and that lasted more than 24 hours despite drinking lots of water. The left side of my chest is covered with bandages and I have a JP drain hanging. They had me walk shortly after and I was very dizzy and got nauseous. I ate some dinner and the next time I got up was much better. I couldn't sleep much at all. I had a huge muscle knot in my neck and just couldn't get comfortable. So I would just doze off and then wake up and the clock would only be like 10 or 15 minutes later. I met all the criteria to be discharged so I ate breakfast, saw the doctor at about 8:30 am and was home by 11:30.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    almost 5 years ago
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    Body part/function

    Loss

    I am feeling a lot of mixed emotions about losing my breast. Sometimes I am just like Yay the cancer is gone who cares about the boob. Other times I feel like I am grieving, very sad and very aware that it is noticeable. One of my son's friends stopped over and when I heard her coming in the door I ran into the other room and covered up with a big blanket. I was not ready to be seen yet. But then today I had to go the docs to get my drain unplugged and I was completely ok going in my pjs and for anyone to see. It is not going to be easy :(

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  6. 6
    over 4 years ago
    mom3b1g1969's Avatar

    Hormone therapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  7. 7
    over 4 years ago
    mom3b1g1969's Avatar

    Lymphedema

    Side Effects

    Not horribly swollen but I have had to wear a compression sleeve that I absolutely hate. I have to do special exercises which aren't at all difficult, just time consuming. And now have had to start the lymphatic massage twice a week.

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