MaggieB's Journey with Colorectal (Colon) Cancer

Patient: Colorectal (Colon) Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 64

  1. 1
    • MaggieB
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
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    Cancer has spread/Metastasized

    Oh No

    I learned the cancer has spread to my liver. I assumed this meant I had no chance of surviving.

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  2. 2
    • MaggieB
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
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    Polyp removal

    Procedure or Surgery

    I had my first colostomy/polyp removal following my initial diagnosis. It went very smoothly and was pain free. Discovered I have FAP (family gene disorder) which enabled me to inform my children the need for immediate checkups. This is very positive because they now have early warning of colon cancer and may avoid getting cancer through early detection.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • MaggieB
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
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    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    I had the cancer removed from my large colon and they were able to reattach my colon. They removed a cue ball size tumor from my liver at the same time. It is unknown at this time if they got it all but they are saying it looks good. I was stage IV at time of diagnosis. After the surgeon removed my staples (40) the incision opened up in areas so my recovery time has been much longer than anticipated. It is now April and I am still healing. I pack the open wound at least once daily. For a few weeks (while my surgeon was on vacation) I had a visiting nurse come by the house to check and repack the wound. It is easy enough to do by myself but was reassuring to have a professional keep an eye on it for signs of infection.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • MaggieB
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
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    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    • MaggieB
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
    MaggieB's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I had my chemo port implanted today and it went well (so far). The procedure was relatively painless and was completed in about 15 minutes. My biggest issue was the placement of the blue sheeting covering me during the procedure. I have mild claustrophobia and I tensed up but they gave me something in my IV and I was fine. I spent 1 hour in the recovery room and then went home (had to be driven home due to hospital rules). I was awake during the procedure and only felt pain twice and it was minor. Most people report no pain at all. Right now my neck and shoulder are stiff and a little sore. I will update this if pain increases or any other symptoms appear. So far so good. It took longer to get prepped than the actual procedure took.

    Went as Expected: Strongly Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  6. 6
    • MaggieB
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
    MaggieB's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I start 6 months of chemo in about 2 weeks. I will update this entry following my first treatment (expected to last 5-6 hours the first day and then I go home with a pump [ in a fanny pack] that feeds the drugs into me. Then I return on the third day, in the afternoon, and they remove the bag and I am good to go until the next week ). In addition to the medicines they will also inject whatever supplements I need (for example; iron, potassium, whatever I need). The Oncologist already ordered anti-nausea meds which I have already picked up from my local pharmacy and was instructed to bring them with me to my first chemo treatment. In addition, I attended a chemo class at my Oncologist's office where I learned about possible side effects, procedures, etc.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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