ariez's Journey with Diffuse Large B-Cell Lymphoma

Patient: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Diffuse Large B-Cell Lymphoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 8 years ago, Female, Age: 81, Stage IV

  1. 1
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    almost 7 years ago
    ariez's Avatar

    R-CHOP

    Drug or Chemo Therapy

    In the beginning having chemo was okay. With each additional treatment, it was getting hard to take. I was supposed to have 6 treatments but only received 5 as the Dr. Said that it was too risky for me because of my age.

    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. 2
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    almost 7 years ago
    ariez's Avatar

    Fatigue (tiredness)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  3. 3
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    almost 7 years ago
    ariez's Avatar

    Remission

    Celebration

    After my second treatment, my PET scan showed that the cancer cells were gone but I continued to receive 3 more treatments of chemotherapy.

    0 Comments
  4. 4
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    over 6 years ago
    ariez's Avatar

    I decided not to have the last (6th) treatment of chemotherapy.

    Decision Point

    My Petscan showed that the cancer was in remission after my second session of chemo and with the necessary two treatments after that plus the 3rd it was too risky for me to continue as I was advised not to.

    0 Comments
  5. 5
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    over 6 years ago
    ariez's Avatar

    PET scan showing 3 suspicious spots

    Oh No

    After being in remission for about a year, my PET scan results did not turn out good. I now have three spots showing that are not in my lymph system and will be having a biopsy.

    2 Comments
  6. 6
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    over 6 years ago
    ariez's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Will be getting a combination of Rituxin and Bendamustine every 4 weeks starting 7/16 with Rituxin and 7/17 & 7/18 with Bendamustine. Has anyone have this combo after a recurrence?...just wondering.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  7. 7
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    over 6 years ago
    ariez's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Upon receiving Rituxin and Treanda due to the recurrence of NHL, the stiffness in my legs disappeared although now my feet has a strange feeling. My tinnitus went full blast at first and now has subsided. I did go to Tai Chi class and I feel that just the breathing exercises helped me through these last few days. Whenever I felt an uncomfotable feeling coming on I would take a deep breath and that would help. I just breathe in through my nose and exhale through my mouth while imagining that the good cells are getting stronger and blowing the cancer cells away. Today, I feel like I will get this into remission again.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    2 Comments
  8. 8
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    over 6 years ago
    ariez's Avatar

    Remission

    Celebration

    After 2 rounds of Rituxin and Treanda my PET scan showed NED - what a surprise as I'm not feeling up to par!

    2 Comments
  9. 9
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    about 6 years ago
    ariez's Avatar

    Finished treatment

    Celebration

    Finished my 6th treatment of Rituxin and Treanda and 2 days later had terrible wheezing and coughing.

    3 Comments
  10. 10
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    over 5 years ago
    ariez's Avatar

    Under care of a pulmonologist

    Other Care

    My immune system was down and I now had a lung infection. My PET scan was supposed to have been done in February but has been put off pending Oncologist's app't. in mid June ... hoping for a NED result!

    0 Comments
  11. 11
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    about 4 years ago
    ariez's Avatar

    Oh No

    Had PET scan 2 days ago and saw Onc. Today with news that ny Cancer is back. I just haven't been able to have a long remission. May try taking the Lenalidomide pill

    0 Comments
  12. 12
    • ariez
    • Experience with Diffuse Large B-Cell Lym...
    about 3 years ago
    ariez's Avatar

    Celebration

    This person has yet to add any details about this experience.

    0 Comments