MeggyinSF's Journey with Colorectal (Colon) Cancer

Spouse/Partner: Colorectal (Colon) Cancer

Patient Info: Diagnosed: over 5 years ago, Male, Age: 35

  1. 1
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Diagnosed

    Oh No

    My spouse was experiencing a lot of discomfort and some blood in his stool so he had a colonoscopy. They found a large polyp in his rectum. A week later, we were called into the doc's office and told he has cancer.

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  2. 2
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Decision Point

    The doc said they could not biopsy one of the enlarged lymph nodes next to the tumor and they have ruled out the option that it is enlarged because of all of the poking around during tests. So we have to make a decision on which type of surgery to go with very soon and he is feeling overwhelmed. Here are the options: 1. transanal full thickness resection; or 2. anterior peritoneal resection - will result in permanent colostomy, or possibly 3. TEM (transanal endoscopic microsurgery) Does anybody have experiences with any of these procedures? Also, he would really like to get in touch with someone who has a colostomy.

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  3. 3
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Removal of rectal tumor

    Procedure or Surgery

    Jeremy opted for the Transanal Endoscopic Microsurgery. The doc got the tumor but not the lymph nodes. He only stayed one night in the hospital and was only in pain for a day or two following the surgery.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Pathology report

    Oh No

    The pathology report came back and they updated his stage: he has moderately differentiated adenocarcinoma with angiolymphatic and perineural invasion. Now they are saying Stage 3...so T2 N1 M0. The doctor told Jeremy he was going to do chemo and then an APR.

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  5. 5
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Decision Point

    We went to the Tumor Board - a meeting where the pathologists, radiologists, oncologists, and surgeons go over the pathology report and recommend a treatment plan. Jeremy decided to go with their recommendation: 6 weeks of chemo (Xeloda) 2 x's day concurrent with radiation M-F for six weeks; then 6 weeks of rest; then an APR which will result in permanent colostomy; then rest/recovery; last but not least 6 three week cycles of Xelox (Xeloda pills + Oxaliplatin infusions). He has to get a CT/PET scan this week or next so that the radiologist can devise the best "path" for radiation.

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  6. 6
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    about 5 years ago
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    Surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  7. 7
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    over 5 years ago
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    Wedding

    Celebration

    We got married at City Hall in San Francisco last Friday - it was wonderful!

    1 Comment
  8. 8
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    My husband took xeloda twice a day, M-F for six weeks while undergoing radiation (M-F as well).

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  9. 9
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    about 5 years ago
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    External radiation

    Radiation

    My husband had six weeks of daily (M-F) radiation while undergoing chemotherapy.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  10. 10
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    about 5 years ago
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    Colostomy

    Procedure or Surgery

    My husband had an APR (abdominoperineal resection) with permanent colostomy. He is currently recovering in the hospital.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  11. 11
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    almost 5 years ago
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    Pathology

    Oh No

    Pathology came back after the APR to reveal there were positive margins, meaning they did not get all of the cancerous tissue. The chance of recurrence after chemo is higher than it would have been if they have been able to retrieve all of the cancerous tissue.

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  12. 12
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    almost 5 years ago
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    Hand foot syndrome

    Side Effects

    Cutaneous oncologist confirmed Hand foot syndrome and provided urea creme. He is having trouble touching anything without discomfort/pain. His fingerprints are gone and he is getting freckles all over his knuckles. Mobility is at an all time low because his feet hurt so much.

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  13. 13
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    He gets an infusion of oxaliplatin followed by two weeks of taking chemo drug Xeloda twice a day, then a week off before the next infusion. He is currently in the middle of six cycles.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  14. 14
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    almost 5 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  15. 15
    • MeggyinSF
    • Experience with Colorectal (Colon) C...
    almost 5 years ago
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    Other Care

    This person has yet to add any details about this experience.

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