lynneann123's Journey with Squamous Cell Carcinoma, Lung Cancer

Patient: Lung Cancer > Non-Small Cell > Squamous Cell Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 61, EGFR mutation positive: Don't Know

  1. 1
    about 5 years ago
    lynneann123's Avatar

    Chemotherapy and radiation combined

    Drug or Chemo Therapy

    Hate the hair loss, loss of taste, exhaustion. I am an active 56 yr old, was involved in volunteering, in the process of obtaining my MA in NPM, volunteered with 2 agencies, and until my brother died in 2010 from end-stage renal disease, helped him with laundry, transportation & shopping I had a he** of a time recovering, spent 3 months between hosp. & 'nursing' homes, and got extremely frustrated w. lack of care & control (on my part)

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. 2
    about 5 years ago
    lynneann123's Avatar

    External radiation

    Radiation

    My whole post just got wiped out by google chrome. Have to come back later.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    about 5 years ago
    lynneann123's Avatar

    Relationship

    Loss

    I've become 'removed' from my only sibling, my sister. I get the feeling that her motives for helping me have moved from panic to 'What about me, I am the 'saver' here'. She gets sullen when my health-care team pays more attention to me than her. She doesn't want to drive me to chemo, unless she doesn't have to stay for the duration, and she'd rather use my car than borrow her husband's. I live on a fixed income & am very careful about using my fuel economically, she is not. I hate asking her to help with anything, because there is always that uncomfortable hesitation & plastic smile & answer.

    1 Comment
  4. 4
    about 5 years ago
    lynneann123's Avatar

    Decision Point

    Since the tumor has shrunk more than 1/2, I am going through the 2nd round of chemo, however, if there is no more change, I have decided not to go through it again. My mother died from a blockage that occurred after chemo in 2000, a blood clot disintegrated her main artery when it was set loose from her arm. I'm not willing to go through that kind of experience.

    0 Comments
  5. 5
    about 5 years ago
    lynneann123's Avatar

    Home care

    Other Care

    The home-health care I get right now is a joke. I have a 70 year old nurse who comes once a week, checks my temp, o2 level & blood pressure, the rest of the time we just yak. Supposed to have had pt/ot, social services, help with my emotional state, but yet to have these, either through my h/c providers or the home health agency. I am completely on my own, & it really, really sucks

    1 Comment