christine's Journey with Brain and Spinal Cord Tumors in Adults

Spouse/Partner: Brain and Spinal Cord Tumors in Adults

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 31

  1. 1
    • christine
    • Experience with Brain and Spinal Cor...
    almost 5 years ago
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    Seizures

    Side Effects

    Started having some really painful headaches everytime she would bend down or put pressure.

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  2. 2
    • christine
    • Experience with Brain and Spinal Cor...
    almost 5 years ago
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    Diagnosed

    Oh No

    Went to the doctor to get a CT Scan and they called her in 2 hours after it was done, she had a mass in her cerebellum.

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  3. 3
    • christine
    • Experience with Brain and Spinal Cor...
    almost 5 years ago
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    Surgery

    Procedure or Surgery

    August 5th first surgery:They took a biopsy of her tumor to find out if it was cancerous: it was a Fibliary Astrocytoma Stage 2.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • christine
    • Experience with Brain and Spinal Cor...
    almost 5 years ago
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    Health insurance issue

    Oh No

    After you turn 26, you no longer can use your parents health insurance. She turned 26 in September. She was only going to have insurance for a month. So the Medi-Cal applying began.

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  5. 5
    • christine
    • Experience with Brain and Spinal Cor...
    almost 5 years ago
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    Anniversary

    Celebration

    Celebrated our 3 year anniversary on September 11 and we went for a picnic!

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  6. 6
    • christine
    • Experience with Brain and Spinal Cor...
    almost 5 years ago
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    Surgery

    Procedure or Surgery

    November 15, second surgery: take as much of the tumor as they can. Left her with no much mobility on her left side.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  7. 7
    • christine
    • Experience with Brain and Spinal Cor...
    almost 5 years ago
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    Rehabilitation

    Other Care

    Since she was immobile from her left side, she was taken to rehabilitation place to get better. Stayed there for about 2 weeks.

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  8. 8
    • christine
    • Experience with Brain and Spinal Cor...
    almost 5 years ago
    christine's Avatar

    Temadar

    Drug or Chemo Therapy

    The first 2 weeks of the 6 weeks of Chemotherapy and Radiation were really easy. After that, she started to get the side-effects: vomiting, fatigue, etc.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment