Psychgirl's Journey with Peritoneal, Mesothelioma

Patient: Malignant Mesothelioma > Peritoneal

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 38

  1. 1
    • Psychgirl
    • Experience with Peritoneal, Mesothel...
    about 5 years ago
    Psychgirl's Avatar

    Surgery

    Procedure or Surgery

    When I went into surgery, they thought I had a benign series of cysts by my ovary and prepared to do a partial hysterectomy. There was a slight chance of ovarian cancer. It took forever to get test results and when they did come in, it was malignant peritoneal mesothelioma. The doctor/surgeon was shocked. Next step, seeing a specialist at University of WI- Madison.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  2. 2
    • Psychgirl
    • Experience with Peritoneal, Mesothel...
    about 5 years ago
    Psychgirl's Avatar

    Diagnosed

    Oh No

    I read online statistics regarding mesothelioma. I researched everything and would just break down and cry each time.

    0 Comments
  3. 3
    • Psychgirl
    • Experience with Peritoneal, Mesothel...
    about 5 years ago
    Psychgirl's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo wasn't too bad. I had cisplatin and alimta. First couple rounds weren't bad, but they did get worse. I had 6 rounds, 3 weeks apart. I just finished a month ago. I was very tired and lost my appetite. The nausea was well controlled with medication.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • Psychgirl
    • Experience with Peritoneal, Mesothel...
    about 5 years ago
    Psychgirl's Avatar

    Decision Point

    After I finished chemo, the big question was whether to have further surgery or do maintenance therapy with the Alimta. I decided not to do either one. I have tumors by my lung that may cause pleural effusion (I've had 5 thoracentesis procedures), and one large "mass" by my ovary. However, the doctors explained the tumors may be "dead" meaning the chemo killed the cells and the tumors may not cause any more symptoms. So I decided against surgery or more chemo for at least the time being. I have a CT in three months unless symptoms return.

    0 Comments