workit's Journey:

Patient: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Follicular Lymphoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 7 years ago, Male, Age: 58, Stage IV

  1. 1
    • workit
    • Experience with Follicular Lymphoma
    over 5 years ago
    workit's Avatar

    Misdiagnosed

    Oh No

    Jan 2010, discovered I had two cancers, Hodgkin's Lymphoma and Follicular non-Hodgkin's Lymphoma, stage IV, probably the later for decades.

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  2. 2
    • workit
    • Experience with Follicular Lymphoma
    over 5 years ago
    workit's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Neuropathy in fingers towards the end of chemo (6 cycles) for the Hodgkin's was the worst part of my treatment. A neighbor, neurologist, guided me through how to better titrate up/then down the dose than the oncologist had prescribed. Being prophylactic about side effects was important in minimizing treatment (ABVD) side effects - mainly constipation and acid reflux. Finished chemo July 2010.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • workit
    • Experience with Follicular Lymphoma
    over 5 years ago
    workit's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Had chemo brain too, or so I was told!

    1 Comment
  4. 4
    • workit
    • Experience with Follicular Lymphoma
    over 5 years ago
    workit's Avatar

    Maintenence treatment or not.

    Decision Point

    Aug 2010 maintainence or watch & wait for fnhl - chose W&W, hate needles and drugs, wrong disease for me!

    1 Comment
  5. 5
    • workit
    • Experience with Follicular Lymphoma
    over 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Diagnosed with transformed DLBCL 2/13/13. Underwent 2 cycles of R+ESHAP chemotherapy (platinum based) which is 7 days of continuous infusion, which produced a compete response.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  6. 6
    • workit
    • Experience with Follicular Lymphoma
    over 3 years ago
    workit's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    April 8th, 2013 began reduced intensity ablation for a allo (donor) stem cell transplant (brother donor).

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  7. 7
    • workit
    • Experience with Follicular Lymphoma
    over 3 years ago
    workit's Avatar

    stem cell transplant

    Procedure or Surgery

    April 16th, 2013 received brother's stem cells to ensure cure of DLBCL and underlying Follicular lymphoma from which some of the DLBCL nodes had transformed from.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    3 Comments