bjriise's Journey with Triple-Negative Breast Cancer, Ductal

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma > Triple-Negative Breast Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 6 years ago, Female, Age: 48, Stage Recurrent, HER2 Positive: No, ER Positive: No, PR Positive: No

  1. 1
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    12/8/2011 diagnosed High grade aggresive triple negative breast cancer

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Lumpectomy

    Procedure or Surgery

    12/20/2011

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Sentinel lymph node biopsy

    Procedure or Surgery

    12/20/2011

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  4. 4
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Lumpectomy

    Procedure or Surgery

    1/3/2012

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    1/31/2012

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  6. 6
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    2/1/2012 through 7/12/2012 Adriamycin/Cytoxan every 3 weeks for 4 times. Taxol every week for 12 times.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  7. 7
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Hair loss (alopecia)

    Side Effects

    Loosing my hair was very hard to deal with. I have had long hair for so long it was hard to cut it off then having it all fall out was so weird. I have always thought I had thin hair but there seemed to be so much falling out it must have been thicker than I thought. I have been having chemo for about 4 1/2 months and even though I still have 4 treatments (4 weeks) left my hair is growing back. It seems to be coming in gray but that is OK. I am just happy that I have hair growing again. Oh and I don't think that it is fair that I lost almost all of the hair on my head but I have had to continue to shave my legs.

    0 Comments
  8. 8
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Chemo brain

    Side Effects

    Some days I feel so confused and have trouble remembering words.

    0 Comments
  9. 9
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Fatigue (tiredness)

    Side Effects

    I am so tired all the time. Just doing little things wears me out. It is so frustrating having so many things you need or want to do but do not have the energy or feel well enough to do them.

    0 Comments
  10. 10
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Hot flashes

    Side Effects

    I haven't had period since I started chemo. Hot flashes are awful and now that it is a 100 degrees here that is not helping. I wonder if my periods will come back or if I am in early menopause.

    0 Comments
  11. 11
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Mouth dryness

    Side Effects

    I didn't have dry mouth with my first chemo medications. Now that I am getting Taxol once a week I have mouth dryness most of the time.

    0 Comments
  12. 12
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Nausea/Vomiting

    Side Effects

    My first chemo treatments were once every three weeks for 4 times. I had nausea from Wednesday when I got the treatment through Monday. The doctor changed medications and Zofran seemed to work the best for me. Now I get Taxol once a week for 12 weeks. I have 4 left to get. I still get nausea now and then but not too bad.

    0 Comments
  13. 13
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Pain

    Side Effects

    Oh my does Taxol make your muscles hurt. I usually get treatments on Wednesday. Friday evening my muscles start hurting and it lasts through the weekends. UGH!

    0 Comments
  14. 14
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Taste change/loss

    Side Effects

    My taste buds have been confused for awhile now. What tastes good and doesn't seems to keep changing.

    0 Comments
  15. 15
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
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    Weight gain

    Side Effects

    I was about 80 lbs overweight when I was diagnosed. The doctors kept stressing how important it is to maintain my weight. I thought I don't want to maintain my weight I want to loose weight. I thought I was going on the chemo diet. At first I did not listen and did not worry about getting all my calories and boy was I sorry I got so sick. Now I make sure my body has the fuel it needs and I am eating healthy. I will try loose weight after treatments right now I am concentrating on fighting the cancer. I have stayed pretty steady with my weight until lately I am gaining and all my close are too tight. YUCK

    0 Comments
  16. 16
    • bjriise
    • Experience with Triple-Negative Breast...
    almost 3 years ago
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    7/9/2012 Heart Weak

    Oh No

    MUGA scan shows Adriamycin has weakened my heart. Doctor prescribes Carvedilol.

    0 Comments
  17. 17
    • bjriise
    • Experience with Triple-Negative Breast...
    about 5 years ago
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    External radiation

    Radiation

    7/30/2012 through 9/14/2012 = 33 Treatments

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  18. 18
    • bjriise
    • Experience with Triple-Negative Breast...
    about 5 years ago
    bjriise's Avatar

    Teeth breaking

    Side Effects

    8/4/2012 One of my bottom molars broke and the dentist said I needed a root canal which I could not afford so I had to have it extracted. The next day one of my molars on the other side broke. :-(

    0 Comments
  19. 19
    • bjriise
    • Experience with Triple-Negative Breast...
    about 5 years ago
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    Finished treatment

    Celebration

    3 surgeries, 5 1/2 months of chemotherapy and 33 radiation treatments done! YIPEE!

    0 Comments
  20. 20
    • bjriise
    • Experience with Triple-Negative Breast...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    12/4/2012 LAVH removed ovaries, fallopian tubes, uterus, and cervix. Mass in left ovary benign. Right ovary atrophied. Many pre-cancerous cells on cervix. Margins clear.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  21. 21
    • bjriise
    • Experience with Triple-Negative Breast...
    almost 3 years ago
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    BRCA1 and BRCA2 Analysis

    Celebration

    No sign of mutation. YEA!!

    0 Comments
  22. 22
    • bjriise
    • Experience with Triple-Negative Breast...
    almost 3 years ago
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    Surgery

    Procedure or Surgery

    8/6/2013 Port Removed

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  23. 23
    • bjriise
    • Experience with Triple-Negative Breast...
    almost 3 years ago
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    Diagnosed with peripheral neuropathy

    Oh No

    I have had problems with neuropathy since chemotherapy. It started in my hands and feet and then progressed to my arms and legs. I now have trouble walking, my balance is way off and there is constant pain. Neurologist has prescribed Gabapentin and Cymbalta.

    0 Comments
  24. 24
    • bjriise
    • Experience with Triple-Negative Breast...
    over 1 year ago
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    Surgery

    Procedure or Surgery

    Left Supra Clavicular Lymph Node Excision

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  25. 25
    • bjriise
    • Experience with Triple-Negative Breast...
    over 1 year ago
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    Cancer is back/Recurred

    Oh No

    Four and a half years with no sign of cancer. Now it is back and aggressive. I have lumps under my left pectoral muscles and had 2 supraclavicular that were removed for biopsy. I should be getting a port put in this week and start chemotherapy next week.

    5 Comments