bjriise's Journey with Triple-Negative Breast Cancer, Ductal

  1. 1 Decision Point Icon Decision Point
  2. 2 Procedure or Surgery Icon Procedure or Surgery
  3. 3 Procedure or Surgery Icon Procedure or Surgery
  4. 4 Procedure or Surgery Icon Procedure or Surgery
  5. 5 Procedure or Surgery Icon Procedure or Surgery
  6. 6 Side Effects Icon Side Effects
  7. 7 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  8. 8 Side Effects Icon Side Effects
  9. 9 Side Effects Icon Side Effects
  10. 10 Side Effects Icon Side Effects
  11. 11 Side Effects Icon Side Effects
  12. 12 Side Effects Icon Side Effects
  13. 13 Side Effects Icon Side Effects
  14. 14 Side Effects Icon Side Effects
  15. 15 Side Effects Icon Side Effects
  16. 16 Oh No Icon Oh No
  17. 17 Radiation Icon Radiation
  18. 18 Side Effects Icon Side Effects
  19. 19 Celebration Icon Celebration
  20. 20 Procedure or Surgery Icon Procedure or Surgery
  21. 21 Celebration Icon Celebration
  22. 22 Procedure or Surgery Icon Procedure or Surgery
  23. 23 Oh No Icon Oh No
  24. 24 Procedure or Surgery Icon Procedure or Surgery
  25. 25 Procedure or Surgery Icon Procedure or Surgery
  26. 26 Oh No Icon Oh No
  27. 27 Other Care Icon Other Care
  28. 28 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  29. 29 Side Effects Icon Side Effects
  30. 30 Side Effects Icon Side Effects
  31. 31 Side Effects Icon Side Effects
  32. 32 Side Effects Icon Side Effects
  33. 33 Other Care Icon Other Care
  34. 34 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  35. 35 Other Care Icon Other Care
  36. 36 Oh No Icon Oh No
  37. 37 Other Care Icon Other Care

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma > Triple-Negative Breast Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 6 years ago, Female, Age: 49

  1. 1
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    12/8/2011 diagnosed High grade aggresive triple negative breast cancer

    Decision Point

    Scary - decide treatment. Lumpectomy, chemotherapy, radiation

    0 Comments
  2. 2
    • bjriise
    • Experience with Triple-Negative Breast...
    over 6 years ago
    bjriise's Avatar

    Lumpectomy

    Procedure or Surgery

    12/20/2011 Lumpectomy/partial masectomy

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • bjriise
    • Experience with Triple-Negative Breast...
    over 6 years ago
    bjriise's Avatar

    Sentinel lymph node biopsy

    Procedure or Surgery

    12/20/2011

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  4. 4
    • bjriise
    • Experience with Triple-Negative Breast...
    over 6 years ago
    bjriise's Avatar

    Lumpectomy

    Procedure or Surgery

    1/3/2012 - Re-Excision Left Breast Mass

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • bjriise
    • Experience with Triple-Negative Breast...
    over 6 years ago
    bjriise's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    1/31/2012 - Insert Tunneled CV Cath (portacath)

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. 6
    • bjriise
    • Experience with Triple-Negative Breast...
    about 6 years ago
    bjriise's Avatar

    Hair loss (alopecia)

    Side Effects

    Loosing my hair was very hard to deal with. I have had long hair for so long it was hard to cut it off then having it all fall out was so weird. I have always thought I had thin hair but there seemed to be so much falling out it must have been thicker than I thought. I have been having chemo for about 4 1/2 months and even though I still have 4 treatments (4 weeks) left my hair is growing back. It seems to be coming in gray but that is OK. I am just happy that I have hair growing again. Oh and I don't think that it is fair that I lost almost all of the hair on my head but I have had to continue to shave my legs.

    0 Comments
  7. 7
    • bjriise
    • Experience with Triple-Negative Breast...
    over 6 years ago
    bjriise's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    2/1/2012 through 7/12/2012 Adriamycin/Cytoxan every 3 weeks for 4 times. Taxol every week for 12 times.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. 8
    • bjriise
    • Experience with Triple-Negative Breast...
    about 6 years ago
    bjriise's Avatar

    Chemo brain

    Side Effects

    Some days I feel so confused and have trouble remembering words.

    0 Comments
  9. 9
    • bjriise
    • Experience with Triple-Negative Breast...
    about 6 years ago
    bjriise's Avatar

    Fatigue (tiredness)

    Side Effects

    I am so tired all the time. Just doing little things wears me out. It is so frustrating having so many things you need or want to do but do not have the energy or feel well enough to do them.

    0 Comments
  10. 10
    • bjriise
    • Experience with Triple-Negative Breast...
    about 6 years ago
    bjriise's Avatar

    Hot flashes

    Side Effects

    I haven't had period since I started chemo. Hot flashes are awful and now that it is a 100 degrees here that is not helping. I wonder if my periods will come back or if I am in early menopause.

    0 Comments
  11. 11
    • bjriise
    • Experience with Triple-Negative Breast...
    about 6 years ago
    bjriise's Avatar

    Mouth dryness

    Side Effects

    I didn't have dry mouth with my first chemo medications. Now that I am getting Taxol once a week I have mouth dryness most of the time.

    0 Comments
  12. 12
    • bjriise
    • Experience with Triple-Negative Breast...
    about 6 years ago
    bjriise's Avatar

    Nausea/Vomiting

    Side Effects

    My first chemo treatments were once every three weeks for 4 times. I had nausea from Wednesday when I got the treatment through Monday. The doctor changed medications and Zofran seemed to work the best for me. Now I get Taxol once a week for 12 weeks. I have 4 left to get. I still get nausea now and then but not too bad.

    0 Comments
  13. 13
    • bjriise
    • Experience with Triple-Negative Breast...
    about 6 years ago
    bjriise's Avatar

    Pain

    Side Effects

    Oh my does Taxol make your muscles hurt. I usually get treatments on Wednesday. Friday evening my muscles start hurting and it lasts through the weekends. UGH!

    0 Comments
  14. 14
    • bjriise
    • Experience with Triple-Negative Breast...
    about 6 years ago
    bjriise's Avatar

    Taste change/loss

    Side Effects

    My taste buds have been confused for awhile now. What tastes good and doesn't seems to keep changing.

    0 Comments
  15. 15
    • bjriise
    • Experience with Triple-Negative Breast...
    about 6 years ago
    bjriise's Avatar

    Weight gain

    Side Effects

    I was about 80 lbs overweight when I was diagnosed. The doctors kept stressing how important it is to maintain my weight. I thought I don't want to maintain my weight I want to loose weight. I thought I was going on the chemo diet. At first I did not listen and did not worry about getting all my calories and boy was I sorry I got so sick. Now I make sure my body has the fuel it needs and I am eating healthy. I will try loose weight after treatments right now I am concentrating on fighting the cancer. I have stayed pretty steady with my weight until lately I am gaining and all my close are too tight. YUCK

    0 Comments
  16. 16
    • bjriise
    • Experience with Triple-Negative Breast...
    almost 4 years ago
    bjriise's Avatar

    7/9/2012 Heart Weak

    Oh No

    MUGA scan shows Adriamycin has weakened my heart. Doctor prescribes Carvedilol.

    0 Comments
  17. 17
    • bjriise
    • Experience with Triple-Negative Breast...
    almost 6 years ago
    bjriise's Avatar

    External radiation

    Radiation

    7/30/2012 through 9/14/2012 = 33 Treatments

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  18. 18
    • bjriise
    • Experience with Triple-Negative Breast...
    almost 6 years ago
    bjriise's Avatar

    Teeth breaking

    Side Effects

    8/4/2012 One of my bottom molars broke and the dentist said I needed a root canal which I could not afford so I had to have it extracted. The next day one of my molars on the other side broke. :-(

    0 Comments
  19. 19
    • bjriise
    • Experience with Triple-Negative Breast...
    almost 6 years ago
    bjriise's Avatar

    Finished treatment

    Celebration

    3 surgeries, 5 1/2 months of chemotherapy and 33 radiation treatments done! YIPEE!

    0 Comments
  20. 20
    • bjriise
    • Experience with Triple-Negative Breast...
    over 5 years ago
    bjriise's Avatar

    Surgery

    Procedure or Surgery

    12/4/2012 LAVH removed ovaries, fallopian tubes, uterus, and cervix. Mass in left ovary benign. Right ovary atrophied. Many pre-cancerous cells on cervix. Margins clear.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  21. 21
    • bjriise
    • Experience with Triple-Negative Breast...
    almost 4 years ago
    bjriise's Avatar

    BRCA1 and BRCA2 Analysis

    Celebration

    No sign of mutation. YEA!!

    0 Comments
  22. 22
    • bjriise
    • Experience with Triple-Negative Breast...
    almost 4 years ago
    bjriise's Avatar

    Surgery

    Procedure or Surgery

    8/6/2013 Port Removed

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  23. 23
    • bjriise
    • Experience with Triple-Negative Breast...
    almost 4 years ago
    bjriise's Avatar

    Diagnosed with peripheral neuropathy

    Oh No

    I have had problems with neuropathy since chemotherapy. It started in my hands and feet and then progressed to my arms and legs. I now have trouble walking, my balance is way off and there is constant pain. Neurologist has prescribed Gabapentin and Cymbalta.

    0 Comments
  24. 24
    • bjriise
    • Experience with Triple-Negative Breast...
    about 2 years ago
    bjriise's Avatar

    Surgery

    Procedure or Surgery

    Left Supra Clavicular Lymph Node Excision 7/8/2016

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  25. 25
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    8/1/2016 - Port Placement

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  26. 26
    • bjriise
    • Experience with Triple-Negative Breast...
    about 2 years ago
    bjriise's Avatar

    Cancer is back/Recurred

    Oh No

    7/8/2016 Four and a half years with no sign of cancer. Now it is back and aggressive. I have lumps under my left pectoral muscles and had 2 supraclavicular that were removed for biopsy. I should be getting a port put in this week and start chemotherapy next week.

    5 Comments
  27. 27
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    7/28/2016 ER visit Paresthesias of left arm

    Other Care

    Cancer is growing in my left bracial plexus and damaging the nerves. I am loosing the use of my left arm and hand.

    0 Comments
  28. 28
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Gemzar/Abraxene 07/29/2016-9/16/2016

    Easy to Do: Agree
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  29. 29
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    Hair loss (alopecia)

    Side Effects

    2nd time I have lost my hair :-(

    0 Comments
  30. 30
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    Mouth sores

    Side Effects

    Ouch!

    0 Comments
  31. 31
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    Diarrhea

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  32. 32
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    Eating problems (anorexia)

    Side Effects

    I can not taste most foods they taste like nothing

    2 Comments
  33. 33
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    Hospitalization

    Other Care

    9/18/2016 - 9/22/2016 skin infection, fever

    0 Comments
  34. 34
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    11/17/2016 Xeloda 4 tablets twice a day, 2 weeks on 1 week off -

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  35. 35
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    11/21/2016 2nd opinion at UCSF

    Other Care

    No biopsies or chemo changes needed.

    0 Comments
  36. 36
    • bjriise
    • Experience with Triple-Negative Breast...
    8 months ago
    bjriise's Avatar

    Cancer has spread/Metastasized

    Oh No

    Cancer has metastasized to my brain. Only one spot 7.5mm. I will start brain radiation soon.

    3 Comments
  37. 37
    • bjriise
    • Experience with Triple-Negative Breast...
    9 months ago
    bjriise's Avatar

    Hospitalization

    Other Care

    10/3/2016-10/14/2016 Acute renal failure caused by antibiotics given during previous hospitalization

    0 Comments