KYRIEELEISON's Journey:

Spouse/Partner: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Male, Age: 52

  1. 1
    almost 5 years ago
    KYRIEELEISON's Avatar

    Diagnosed

    Oh No

    27 years in the penitentiary for an accidental shooting was the time that society required this human to serve in order to be "redeemed" back into the community. Less than a week after being paroled this man is diagnosed with Glioblastoma Multiforme IV without a soul in the world by his side.

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  2. 2
    almost 5 years ago
    KYRIEELEISON's Avatar

    Complete tumor resectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    almost 5 years ago
    KYRIEELEISON's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Aside from the initial diagnosis, this is where the human begins to list like a ship at sea.This is where anyone who is standing by his side might begin to see a human get sick fighting for his life. This is where desparity shows itself to you in the saddest way as someone tries to live through the process death. They ran that chemo right along that radiation coming out of surgery and with all the western medicine they had. It's a good thing Cray had an optimum athletich physique or the chemo and radiation surely would have killed him!!

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    almost 5 years ago
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    External radiation

    Radiation

    Cray had 30 consecutive radiation treatments and when he came out from the room where they gave him radiation he appeared to have a fried brain. The radiation didn't help like they hoped it would. One of most degrading and invasive tx procedures I've seen. Oh and there's no privacy, everyone sitting in the waiting room sees you. There's something about the lack of privacy that's unsettling and the change rooms were adjacent to the waiting room and I felt sorry for the ladies who had to go in and come out of those change rooms in front of strangers.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    almost 5 years ago
    KYRIEELEISON's Avatar

    Thinking problems

    Side Effects

    What a feeling of deeply sad helplessness as you watch another human suffer and your hands can do nothing to help soothe this person, your words cannot give hopeful promises and the kisses you give are now just tokens.

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  6. 6
    almost 5 years ago
    KYRIEELEISON's Avatar

    STROKE

    Oh No

    Cray suffered a mini stroke from the Avastin that went undetected for weeks until he mentioned he couldn't see. Chemotherapist sends us to a Neurologist who advises us to stop the Avastin because Cray is at risk for another stroke. Chemotherapist chats with Neurologist who has a sudden change of heart and now encourages Cray to contunue the Avastin or he will die quickly from the tumor progression.First time in the year of dealing with this medical situation that we have recived conflicting information and that I feel uneasy now.

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