DeniseD's Journey:

Patient: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Follicular Lymphoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: almost 6 years ago, Female, Age: 65, Stage IV

  1. 1
    • DeniseD
    • Experience with Follicular Lymphoma
    almost 5 years ago
    DeniseD's Avatar

    Problem with doctor

    Oh No

    When I visit the doctor, I expect to leave with more answers than questions and that has not been the case. I feel like my questions are not important. The price I pay for his 5 min. would be better spent at the mall, at least I would leave satisfied. I will be looking for a new doctor in the next couple of months. I will try Mayo in Florida.

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  2. 2
    • DeniseD
    • Experience with Follicular Lymphoma
    over 4 years ago
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    Changing Doctor

    Decision Point

    I quit going to my doctor 6 mos. ago due to his cold impersonal attitude. When I ask a question, he avoids the question and ask something completely different. When my husband asks a question, he totally ignores him and looks the other way. I have no insurance, yet we have paid all bills in full. I went to MD Anderson and they want $1500 just for a consultation, that's not going to happen. So I have finally found a new physician at a different facility and am waiting on a referral from my primary care. I did a lot of research and his patient reviews are excellent and credentials are top notch. I am once again optimistic :)

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  3. 3
    • DeniseD
    • Experience with Follicular Lymphoma
    over 4 years ago
    DeniseD's Avatar

    New Doctor

    Decision Point

    I found a wonderful new Doctor. After lots of research, visits to facilities, phone calls and recommendations, I finally had my first visit with my new Doctor. I learned a lot in my first visit. My husband and I both felt very comfortable with my choice. I finally feel confident that I am in good hands. Yipee!!

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  4. 4
    • DeniseD
    • Experience with Follicular Lymphoma
    over 4 years ago
    DeniseD's Avatar

    Bone Marrow test

    Procedure or Surgery

    I was expecting it to be painful, however I don't remember a thing past "you are going to feel a little pressure." I was a little sore the next couple of days, but not bad at all. The staff was exceptional.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    • DeniseD
    • Experience with Follicular Lymphoma
    over 4 years ago
    DeniseD's Avatar

    New scan

    Procedure or Surgery

    I had my first scan 16 mos. ago and my second last week. Now we have something to compare.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  6. 6
    • DeniseD
    • Experience with Follicular Lymphoma
    over 4 years ago
    DeniseD's Avatar

    All tests came back good news

    Celebration

    Although it is still growing, it is still on simmer. It is not in the bone, yipee. I will continue in watchful wait. Next scan in 6 mos. I have complete confidence in my new doctor and that is a good feeling.

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