DeniseD's Journey:
Patient: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Follicular Lymphoma
Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: almost 11 years ago, Female, Age: 70, Stage IV
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Experience Icon Descriptions
Procedure: Drag this icon to show a procedure.
Radiation: Drag this icon to show a specific radiation therapy experience.
Drug Therapy: Drag this icon to show a specific drug therapy experience.
Clinical Trial: Drag this icon to show a clinical trial experience.
Side Effect: Drag this icon to show experience with a specific side effect.
Oh No: Drag this icon to show when something bad happened (e.g., cancer’s back, lost job).
Celebration: Drag this icon to show when something good happened (e.g., last treatment, hair is back).
Loss: Drag this icon to show a time of loss (e.g., lost hair, lost loved one).
Decision Point: Drag this icon to show a time when you had to make a tough decision.
Other Care: Draft this icon to show a time when you needed other care (e.g., hospice, psychotherapy).
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Problem with doctor
Oh No
When I visit the doctor, I expect to leave with more answers than questions and that has not been the case. I feel like my questions are not important. The price I pay for his 5 min. would be better spent at the mall, at least I would leave satisfied. I will be looking for a new doctor in the next couple of months. I will try Mayo in Florida.
Changing Doctor
Decision Point
I quit going to my doctor 6 mos. ago due to his cold impersonal attitude. When I ask a question, he avoids the question and ask something completely different. When my husband asks a question, he totally ignores him and looks the other way. I have no insurance, yet we have paid all bills in full. I went to MD Anderson and they want $1500 just for a consultation, that's not going to happen. So I have finally found a new physician at a different facility and am waiting on a referral from my primary care. I did a lot of research and his patient reviews are excellent and credentials are top notch. I am once again optimistic :)
New Doctor
Decision Point
I found a wonderful new Doctor. After lots of research, visits to facilities, phone calls and recommendations, I finally had my first visit with my new Doctor. I learned a lot in my first visit. My husband and I both felt very comfortable with my choice. I finally feel confident that I am in good hands. Yipee!!
Bone Marrow test
Procedure or Surgery
I was expecting it to be painful, however I don't remember a thing past "you are going to feel a little pressure." I was a little sore the next couple of days, but not bad at all. The staff was exceptional.
New scan
Procedure or Surgery
I had my first scan 16 mos. ago and my second last week. Now we have something to compare.
All tests came back good news
Celebration
Although it is still growing, it is still on simmer. It is not in the bone, yipee. I will continue in watchful wait. Next scan in 6 mos. I have complete confidence in my new doctor and that is a good feeling.