bettyboopfranz's Journey with Ductal carcinoma in situ (DCIS)

Patient: Breast Cancer > Ductal carcinoma in situ (DCIS)

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 5 years ago, Female, Age: 61, Stage IV, HER2 Positive: No, ER Positive: No, PR Positive: No

  1. 1
    over 3 years ago
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    Breast Cancer Diagnosis

    Oh No

    I originally had only pain under my arm when I would shower and wash. I thought that maybe it was a swollen lymph node when I finally went to the doctor. She sent me for a sonogram. I was shocked to find out that I had breast cancer.

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  2. 2
    over 3 years ago
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    Double Mastectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    over 3 years ago
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    Cellulitis Infection

    Oh No

    I had chills and a fever the evening after the left drain was removed. Five days later I was hospitalized and put on iv antibiotics.

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  4. 4
    over 3 years ago
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    Surgery

    Procedure or Surgery

    My plastic surgeon came in on Saturday and opened up the site of the infection and cleaned it out. He did this to prevent the Infectious Disease doctor from opening me up and removing the tissue expander. All went well.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    over 3 years ago
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    Antibiotics

    Drug or Chemo Therapy

    I was sent home with 2 different oral antibiotics after 2 weeks in the hospital. Rifampin is used for TB, leprosy and anthrax victims. Levaquin is also used for TB. My reactions to these drugs was actually worse than my chemo side effects.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    over 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  7. 7
    over 3 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  8. 8
    over 3 years ago
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    External radiation

    Radiation

    I did experience some pretty bad burns, kind of like bad sunburn. I had asked for burn medication in advance but they insisted that they would prescribe it if I needed it. When I did need it, it ended up that the usual meds were contraindicated due to other medical problems I had. The alternative drug was not covered. I had to fight the insurance company for 2 weeks. They finally approved it the day I finished radiation. Although I still had burns for a while afterwards I had found that Calmaseptine worked better than the prescriptions but it was hard to wash off and the zinc in it could cause a worse burn during radiation. When I could finally use it, they approved the prescription. [email redacted]

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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  9. 9
    over 1 year ago
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    Cancer has spread/Metastasized

    Oh No

    In December 2017 I was becoming short of breath and using my inhaler more often than usual. The Pulmonalogist sent me for a lung cancer screening. They found nothing in my lungs but something on my spine. My oncologist sent me for a pet scan. They found "suspicions lymph nodes" in my neck, on my spine and on my hip. After biopsy of my hip, they determined that it was metastatic and prescribed a course of treatment with Faslodex, Xgeva, Ibrance and possibly they will add Letrozole.

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  10. 10
    11 months ago
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    Cancer has spread/Metastasized

    Oh No

    In February my PET showed lesions in my hip and various bones. I began Ibrance, Faslodex and Xgeva. In July my PET showed no improvement and there were more lesions. My doctor decided to biopsy and the new lesions were triple positive.

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  11. 11
    11 months ago
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    Targeted therapy

    Drug or Chemo Therapy

    Digestive issues. Gas pains. Consipation and Diarrhea swinging back and forth.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  12. 12
    11 months ago
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    Constipation

    Side Effects

    This person has yet to add any details about this experience.

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