Jalemans' Journey with Uterine Leiomyosarcoma

Patient: Endometrial (Uterine) Cancer > Uterine Leiomyosarcoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 6 years ago, Female, Age: 63, Stage I

  1. 1
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    about 6 years ago
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    Surgery

    Procedure or Surgery

    Full hysterectomy + ovaries & fallopian tubes

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. 2
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    about 6 years ago
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    Told I have this awful cancer

    Oh No

    Surgeon wrote "leiomyosarcoma" on my hospital wall

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  3. 3
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    almost 6 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    almost 6 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    almost 6 years ago
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    Allergic reaction

    Side Effects

    Taxotere caused blisters on my chest, WBC fell off the charts, shortness of breath, issues with my liver, & issues with my thyroid. Chemo put on hold for 2 weeks. Back in business after 2 weeks. Next round with Taxotere will be 20% less & they will give me Neulasta.

    0 Comments
  6. 6
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    almost 6 years ago
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    Endocrinologist

    Other Care

    thyroid results came back not so good, go to endocrinologist for biopsy next month

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  7. 7
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    almost 6 years ago
    Jalemans' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Hospitalized due to effects of chemo WBC went to 0.3, dizzy, chest pain. Chemo temporarily stopped & then strength reduced by 20%.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. 8
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    almost 6 years ago
    Jalemans' Avatar

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  9. 9
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    almost 6 years ago
    Jalemans' Avatar

    Other

    Procedure or Surgery

    Had thyroid biopsy. No cancer! Have hyperthyroidism & will have to treat when done with chemo.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  10. 10
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    almost 6 years ago
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    Hospitalization

    Other Care

    Fever, nausea, direhea, vomiting. Hospitalized 6 days. Unable to determine what is going on. Antibiotics didn't help. Eventually start to improve on my own. Oncologist suggests we stop chemo.

    0 Comments
  11. 11
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    almost 6 years ago
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    Scan from hospital shows 2 lymph nodes in my chest are swollen.

    Oh No

    Radiologist couldn't do needle biopsy as nodes too close to arteries & heart. Nodes doubled in size since July.

    1 Comment
  12. 12
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
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    Oh No

    dxed with breast cancer

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  13. 13
    • Jalemans
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    Jalemans' Avatar

    Surgery

    Procedure or Surgery

    partial masectomy

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments