sailorgirl's Journey with Squamous Cell Cancer, Unknown Primary

Spouse/Partner: Cancer of Unknown Primary > Squamous Cell Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 6 years ago, Male, Age: 70

  1. 1
    • sailorgirl
    • Experience with Squamous Cell Cance...
    about 6 years ago
    sailorgirl's Avatar

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • sailorgirl
    • Experience with Squamous Cell Cance...
    about 6 years ago
    sailorgirl's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • sailorgirl
    • Experience with Squamous Cell Cance...
    about 6 years ago
    sailorgirl's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I'm amazed that the anti-nausea drug used prior to Cisplatin (chemo) costs $900 per dose! And it doesn't last more than 12 hours. Finally had to resort to Morphine and Steroids.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • sailorgirl
    • Experience with Squamous Cell Cance...
    about 6 years ago
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    External radiation

    Radiation

    Be prepared for serious burn injury, loss of mobility, and risk of infection

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • sailorgirl
    • Experience with Squamous Cell Cance...
    about 6 years ago
    sailorgirl's Avatar

    Most of the above!

    Side Effects

    Skin loss, burns, infection, heartburn, nausea, headache, jaw ache, fatigue, mouth sores, thickened mucous and constantly having to spit, weight loss, lack of sexual interest (sex in general), inability to taste, swallowing difficulties, weakness, etc.

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  6. 6
    • sailorgirl
    • Experience with Squamous Cell Cance...
    about 6 years ago
    sailorgirl's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    Tried acupuncture, but it's not covered by insurance. We're already broke!

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  7. 7
    • sailorgirl
    • Experience with Squamous Cell Cance...
    about 6 years ago
    sailorgirl's Avatar

    Decision Point

    This person has yet to add any details about this experience.

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