SullyJackson's Journey:

Patient: Lung Cancer > Non-Small Cell > Adenocarcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 69, Stage IIIB, EGFR mutation positive: Yes

  1. 1
    over 5 years ago
    SullyJackson's Avatar

    Cancer is back/Recurred

    Oh No

    My husband called an ambulance because we thought I was having a heart attack. My left arm was numb, I had a terrible pain in my back and burning in my arm pit. I got to the hospital and it wasn't my heart. The ER doc decided to do a chest exray and then a contrasting CT of my lung. He came back and asked if I still had an oncologist, being an 11 year breast cancer survivor. I said yes I did and he said I should call for an appointment in the morning. Everyone forgot about why I was there in the first place. It was a pinched nerve. lol

    0 Comments
  2. 2
    over 5 years ago
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    Pulmonary specialist

    Other Care

    He found that I also have emphazema and 58% oxygen capacity in both lungs. There isn't much to be done except to lose weight and exercise.

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  3. 3
    over 5 years ago
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    PET Scan

    Other Care

    This showed that I have 2 tumors near my heart, one far down in my right lung and it's in my lymph node between my lungs, near the trachea. No surgery nor radiation for me. Nodes are too far apart for radiation and I can't afford to lose a lung.

    3 Comments
  4. 4
    over 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Fatigue is my major side effect. I sleep a lot and don't do simple chores that I used to. The doctor told me to walk but it is so hot I can't breath when I walk outside.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  5. 5
    over 5 years ago
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    No cancer in brain

    Celebration

    The doc ordered a brain scan and it hasn't spread there, or anywhere other than the one lymph node as far as we know!

    1 Comment
  6. 6
    about 5 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    This is the second time I've had a port. The last one was 11 years ago when I had breast cancer. This port was placed in the same place and the tubes are closer to the surface. It is also tender to the touch, though I've had it for about 2 months. Still, I would hate to try to go through this without one. My veins are not good so it would be a nightmare.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. 7
    about 5 years ago
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    Drug or Chemo Therapy

    Had my third chemo treatment. They said my side effects would stay about the same. Actuallly, I didn't have any nausea but the heat was much worse. My face and neck turned red and felt really hot. This is 3rd day out and it is subsiding. The fatigue is definitely still there. I slept 15 hours the day after.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    2 Comments
  8. 8
    about 5 years ago
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    Celebration

    So excited today. Just came from chemo and getting the results from my CT scan. My tumor shrunk from the size of a cantaloupe to the size of a plum! Also, the spot at the bottom of my lung was ap-parently an infection rather than cancer and it is completely gone. He has restaged my cancer from a IV to a IIIA. Interesting to me is that I didn't know my tumor was that large in the first place and I thought my orig-inal diagnosis was a IIIB instead of a IV. Anyway, the end result is that I can have radiation now and he thinks I can be completely cancer free at some point. Wow! So all's well that ends well.

    7 Comments
  9. 9
    about 5 years ago
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    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    about 5 years ago
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    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  11. 11
    about 5 years ago
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    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    about 5 years ago
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    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  13. 13
    about 5 years ago
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    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  14. 14
    about 5 years ago
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    External radiation

    Radiation

    I had my first chemo Carbo/taxol - radiation treatment yesterday. It's 2:30 am and I can't sleep. Not sure why except for the upset stomach, blurred vision and heat in my throat. I know I'm very concerned about the side-effects as we proceed. Because of the terrible fatigue I experienced with just chemo, the onc is afraid I might not be about to tolerate the combo and may have to stop the chemo. He said that gives me an additional 10% chance of a being cancer free or whatever the political correct term is today. I'm not ready to give up on that extra 10% at this point. We’ll see what the treatment today brings. Sure hope this sleeplessness is only temporary.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    3 Comments
  15. 15
    about 5 years ago
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    Radiation

    I've now had 15 radiation treatments but I'm doing taxol/carbo with it. I think fatigue is the main side effect from radiation. I think the others, nausea, constipation, diaharrea, etc. are all from the chemo.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  16. 16
    almost 5 years ago
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    External radiation

    Radiation

    I started with 38 radiation treatments to go. It's now down to three.I did chemo every other week during this process and I'm finished with it. Then it is wait for the results for six weeks.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  17. 17
    over 4 years ago
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    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  18. 18
    over 4 years ago
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    Symptom Management

    Found out 2/11/15 I had a lung infection caused by radiation. I have been on steroids, antibiotics and oxygen since then. Finally, 5 1/2 weeks later, I'm starting to feel better but having some problems feeling sad and sometimes disoriented and confused. I think it must be the steroids. In a couple of weeks I will have another CT to see if the infection is gone and I can get off them.

    0 Comments
  19. 19
    over 4 years ago
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    External radiation

    Radiation

    I finished about 54 rounds of radiation four months ago. Seven weeks ago I found out I had a lung infection. I've been taking steroids & antibiotics since then. I also went on oxygen at that time. Two days ago I saw the pulmonologist and found out the infection had been caused by an allergic reaction to the radiation. It has a name but can’t think of it now. I was hopeful that the oxygen was temporary but now know that I have scar tissue in my lungs, of course, and so my lung capacity is reduced. Have to remain on oxygen for ever now. Thankful that I can breathe.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments