Lost904's Journey with Colorectal (Colon) Cancer

Family/Friend: Colorectal (Colon) Cancer

Patient Info: Receiving hospice or palliative care, Diagnosed: over 9 years ago, Male, Age: 60

  1. 1
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Colostomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Neutral/NA
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    cancer was removed with surgery

    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Cancer is back/Recurred

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Cancer has spread/Metastasized

    Oh No

    Has Metastasized into the lungs

    0 Comments
  8. 8
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Back on Chemo, fortunately never had hair loss, but was felt very ill.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  9. 9
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Hand foot syndrome

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    changed to different form of Chemo

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  11. 11
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Allergic reaction

    Side Effects

    Turned Red as a lobster, couldn't breath, felt like he was on fire. took his breath away. it was so bad that they gave him one other option of chemo.

    0 Comments
  13. 13
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Decision Point

    Does he try the last possible attempt at Chemo and take a chance of death or does he take a chance continuing with NO chemo anymore knowing he will die anyway. He chose to discontinue Chemo and take his chances on his own. Its been a long journey but if i remember correctly they gave him maybe 6 months if he discontinued. Its been almost a year without any chemo now and he is struggling with Cancer every day but he is a fighter.

    0 Comments
  14. 14
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Hospice

    Other Care

    Home Hospice because he wants to be comfortable in his own home. He has good days and bad days. Its a roller coaster ride that never ends. You want to get off but the ride keeps going around and around with what looks like to be no end. The Hospice Nurse is very nice. She is sweet and knows how to interact and speak with us. They also have a social worker to come in and speak with us as we need. They keep him comfortable the best they can.

    0 Comments
  15. 15
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Many symptoms are now occurring

    Side Effects

    He has: 1. a loss of appetite but will continue to eat small amounts knowing if he does not eat he will die (only eating to stay alive)...oatmeal in the morning, maybe a snack during the day and a VERY light dinner and continues to drink coffee throughout the day. 2. Sleeping most of the day. In the beginning got very frustrated that he was sleeping a lot. 3. Dizziness. 4.Nausea without vomitting. 5. started blacking out about a month and a half ago. Blacked out and woke up on the floor maybe 3 times since then. 6. confusion: time of day, calling things by other names (ex: oven the stove, stove the microwave, bag the basket, etc. 7. loss of memory: forget how to spell his wife's name, doesn't remember commonly known places such as Staples or Target, forgets who people are that are not in contact with him on a regular basis such as one of my close friends or his Aunt or Uncle, etc. 8. Has become very weak and needs a cane to walk most or all of the time, has fallen in shower, has fallen while walking. 9. Leans to one side when sitting periodically. Sometimes he can sit up. His head can no longer be held straight up while sitting or walking. 10. Started speaking of asking for forgiveness and speaking of heaven about a week and a half ago. 11. Cares less about things but still worries about family and if we will be ok without him when he's not around. 12. Sometimes sentences trail off. 13. I'm sure there are more, but I will add them as I remember them...

    0 Comments
  16. 16
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Family having confusion...

    Oh No

    One moment my dad looks like its nearing the end, the next day he seems like he could last another month or so. He is such a fighter and he is so strong. My mom and I are confused, sad, angry, tired and worried. I want to know if anyone else has been through this and what to expect. If you would have asked me last week how Dad's doing..I would have told you he looks like he is on his death bed. This week, I would tell you...I don't know, ok I guess...he's hanging in there. This is constant and Mom and I are not sure what to make of it. The Hospice Nurse thinks it could be before the end of the month which would only give us another week with my Dad. That observation seemed correct last week but this week he looks better..(not better by any means but better than the week before). He always likes going for rides in the car with my Mom but NEVER would go with anyone else. Not even me (his daughter) or his close friend. But out of no where after looking like he was nearing the end last week, he talks about going for a long ride with his friend...He didn't care if it was even out of state (which seems strange and caught my Mom, his Friend and Myself off guard...leaving us in awe. We are so confused. Does my mom miss work and start working half days? Is it that close to the end or does she save that time off for when it's closer to the end? How will we know when its closer to the end? I know there is no definitive answers for life and death. I know everyone is different. My mom and I are just looking for answers if anyone is in or has been in a similar situation. Any help, knowledge and/or advice is appreciated. Thank you.

    0 Comments
  17. 17
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    appetite & memory

    Side Effects

    So dad's been eating less for a while now. Oatmeal in the morning, maybe one snack throughout the entire day and a very light dinner (maybe 3 bagel bites or a pancake, etc) and an apple (every day an apple:) and hello again mr roller coaster....today he ate oatmeal for breakfast, a couple snacks throughout the day, two (small sized) frozen dinners, some italian bread with butter, some jello, a little debbie pastry and an apple. WHAT?!?! I don't know. Happy that he's eating and happy he's still kicking! Just don't understand. Memory seems to still be going little by little (its worse at times when he wakes up after periods of sleeping) OH...And found out today from Mom that the Nurse (who is a sweetheart but very straight forward with us as we asked her to be...we don't want her to sugar coat anything!) said to my Mom that with the amount of morphine that my Dad was taking on a regular basis, she's surprised he is still alive. (Dad doesn't know this was said) He still takes the morphine but not around the clock, he takes it more so as he needs it now. So here we are again...just hanging in there and loving him and spending as much time as our lives allow not knowing what the heck is going on. I'm so sad to see him go through this and I cry...A LOT! But I also smile when I see him smile a little smile and when he lets me hold his hand as he sits there. And I smile when I think of all the things we have shared and the things we did together when I was younger.

    0 Comments
  18. 18
    • Lost904
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Lost904's Avatar

    Confusion

    Side Effects

    Two days ago Dad started to forget a lot of everything. He can't figure out what anything is or how to do things he used to do for example, he forgot how to brush his teeth, forgot what to do with his hands after he washed them (dry with a towel), forgot how to make coffee, calls his wallet "pants", calls me my mom, my mom my son and so on, and he can't put sentences together anymore very well. he forgot how to use the remote control for the tv and the list could go on forever. It is very sad to see such a smart man go through this. He was a number one competitor in online scrabble games with others around the world, my human dictionary and human calculator and now the cancer has just taken him over and its so sad. So now we have decided he can't be alone anymore so Mom and I will be sure of it. The nurse seems to think he has anywhere from one to three weeks left. i asked if he would last two or three months and she said very unlikely. So only time will tell.

    1 Comment