valleyofroses' Journey with High-Grade Astrocytoma (also called G...

Patient: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 26

  1. 1
    about 5 years ago
    valleyofroses' Avatar

    Diagnosed

    Oh No

    I was diagnosed finally it took the pathologist two weeks because it is a rare cancer in younger people called PXA-A.It also does and doesn't have specific characteristics of PXA-A. apparently it is so rare they do not have it specifically on this website.

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  2. 2
    about 5 years ago
    valleyofroses' Avatar

    Surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    about 5 years ago
    valleyofroses' Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    over 4 years ago
    valleyofroses' Avatar

    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  5. 5
    over 4 years ago
    valleyofroses' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    over 4 years ago
    valleyofroses' Avatar

    Cancer is back/Recurred

    Oh No

    it didnt spread. Fluid has returned where my brain tumor was. I dont know what we will do yet besides more chemo. I have a feeling my surgeon will want to do more.

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  7. 7
    almost 3 years ago
    valleyofroses' Avatar

    Surgery

    Procedure or Surgery

    Surgery was to remove cyst wall and then became infected.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
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  8. 8
    almost 3 years ago
    valleyofroses' Avatar

    Surgery

    Procedure or Surgery

    This surgery was to remove infected skull flap

    Went as Expected: Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  9. 9
    almost 3 years ago
    valleyofroses' Avatar

    Surgery

    Procedure or Surgery

    This was too replace my skull flap which they had sterilized.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  10. 10
    almost 3 years ago
    valleyofroses' Avatar

    Surgery

    Procedure or Surgery

    This was too remove the once more infected skull flap. The flap was then sent away to have a copy made then disposed of.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  11. 11
    almost 3 years ago
    valleyofroses' Avatar

    Surgery

    Procedure or Surgery

    Hurray this is my last skull surgery, this time they replaced the flap with a prosthesis.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  12. 12
    almost 3 years ago
    valleyofroses' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I begain a treatment not normally used for my type of cancer it is a mutation therapy.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  13. 13
    about 2 years ago
    valleyofroses' Avatar

    Cancer is back/Recurred

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  14. 14
    about 2 years ago
    valleyofroses' Avatar

    Surgery

    Procedure or Surgery

    My first Biopsy

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  15. 15
    about 2 years ago
    valleyofroses' Avatar

    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  16. 16
    about 2 years ago
    valleyofroses' Avatar

    Now that i have finished radiation for the second time.

    Side Effects

    It seem that tumor cells can be killed to quickly and have caused inflammation in my brain. Causing me to experience seizures.

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  17. 17
    almost 2 years ago
    valleyofroses' Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  18. 18
    almost 2 years ago
    valleyofroses' Avatar

    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  19. 19
    almost 2 years ago
    valleyofroses' Avatar

    Other

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  20. 20
    almost 2 years ago
    valleyofroses' Avatar

    complications to surgical incision due to radiation

    Oh No

    This person has yet to add any details about this experience.

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  21. 21
    almost 2 years ago
    valleyofroses' Avatar

    Procedure or Surgery

    They removed part of my skull

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
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  22. 22
    almost 2 years ago
    valleyofroses' Avatar

    Surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  23. 23
    almost 2 years ago
    valleyofroses' Avatar

    Hyperbaric oxygen treatment !

    Other Care

    This person has yet to add any details about this experience.

    0 Comments