marilynrn's Journey with Non-Hodgkin Lymphoma (NHL)

Patient: Non-Hodgkin Lymphoma (NHL)

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 5 years ago, Female, Age: 68, Stage IV

  1. 1
    • marilynrn
    • Experience with Non-Hodgkin Lymphoma...
    almost 5 years ago
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    Suspected lipoma removed from R side of back of head

    Procedure or Surgery

    Removal of small lump from back of head. Thought to be a lipoma. Pathology states it lymphoma of unknown kind. Specimens sent to another lab in Texas for further testing. Waiting to hear back. Results indicate Follicular lymphoma. Bone Marrow biopsy and PET scan scheduled in future.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  2. 2
    • marilynrn
    • Experience with Non-Hodgkin Lymphoma...
    almost 5 years ago
    marilynrn's Avatar

    bone marrow biopsy

    Procedure or Surgery

    I thought it was going to be very painful during and after the procedure. I also thought I would receive an incision before inserting the large bore needle into the bone. They started an IV easily and gave me Versed and Fentanyl and I fell asleep during the procedure. I felt a little pain that lasted only a second or two. I awoke easily and haven't had any pain afterward. I was able to walk out of there pain free. I took the bandage off this morning and I can't even find the site where they inserted the needle.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    2 Comments
  3. 3
    • marilynrn
    • Experience with Non-Hodgkin Lymphoma...
    about 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I received Rituxin and other chemotherapy infusion meds along with anti nausea, benadryl and steroids for two days each month. The third day I received a Neulasta shot to help the bone marrow produce blood cells

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • marilynrn
    • Experience with Non-Hodgkin Lymphoma...
    about 4 years ago
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    Confusion

    Side Effects

    I did suffer some confusion to a mild degree along with some loss of appetite, nausea, and quite a bit of fatigue. I was given anti-nausea pills and pain pills which helped with the nausea, appetite and sleep.

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  5. 5
    • marilynrn
    • Experience with Non-Hodgkin Lymphoma...
    about 4 years ago
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    Remission

    Celebration

    After six months of chemotherapy, I had another PET Scan which showed no "hot spots" anywhere. Of course, I felt very relieved and my whole family went to dinner to celebrate.

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  6. 6
    • marilynrn
    • Experience with Non-Hodgkin Lymphoma...
    about 4 years ago
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    Whether to receive "maintenance therapy" or not.

    Decision Point

    I decided to receive the Rituxin only every two months for one day for two years. I decided not to have a repeat PET scan after one year since I am not having any symptoms. I still get a little fatigued and have some trouble sleeping, but other than that I feel good.

    0 Comments
  7. 7
    • marilynrn
    • Experience with Non-Hodgkin Lymphoma...
    about 4 years ago
    marilynrn's Avatar

    Other

    Other Care

    Decided to have "maintenance therapy." Rituxin infusion every 8 weeks for two years.

    6 Comments