AngiSarcFightr's Journey:

I began having abdominal pain in Jan 2012 and after about a month of increasingly intense and frequent pain, I finally saw my primary, who thought I had diverticulitis and treated me for same. Referred me to a gastroenterologist who concurred and put me on more antibiotics, ordered a colonoscopy, but decided to do CT just to be sure (thank God). Found a 6x8 cm mass on or near left ovary. Referred to ob/gyn. He referred me to gynecological oncologist at Scott & White in Temple, TX. I was so afraid I had ovarian cancer, but he was confident it would come back malignant since my CA125 and HE4 were within normal limits. Surgery for removal of tumor and total hysterectomy done 5-7-12. Surgical report was malignant tumor. Pathology returned a week later with diagnosis of angiosarcoma. Referred to oncologist in Wichita Falls, TX, who has now referred me to MD Anderson in Houston because he said he has only had 2 sarcoma patients and no angiosarcoma patients in his career. MDA has a large sarcoma center with lots of experience with AS. This is all very new and I feel very overwhelmed, but am taking this one day at a time with lots of prayer.