hgbkokopelli's Journey with Thyroid Cancer

Patient: Thyroid Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 56

  1. 1
    almost 5 years ago
    hgbkokopelli's Avatar

    Diagnosed

    Oh No

    I had an ultrasound because one had not been done in over 1 year, I fired the endocrinologist and then went to self medicating as the primary dr said it didn't need to be treated. I came back to him and forced the issue for help and when US was done more followup was necessary and so a needle biopsey was done halloween 11. Then Nov 2 the call came at 1:13 pm and I chose to take it on my own as a nurse with broad shoulders, then the OH NO I was let go from work, and the health insurance issue arose with no care or only limited care provided, and the money issue especially when husband had me borrow against my retirement for a house and he didn't help pay as promised and they went to default....

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  2. 2
    almost 5 years ago
    hgbkokopelli's Avatar

    Surgery

    Procedure or Surgery

    I had a total thyroidectomy in which night nurse undid a surgica;;y placed pressure dressing so had a golf ball hematoma in middle of my neck, no voice for 5+ months, no speech therapy even offered, Surgeon wrote I had erosive esphagitis from a lap band surgery done 2 1/2 years before and no mention of that ever to me. I applied for STD and have been denied it ever since OCT last year as the surgeon and family dr not on same page had to hire a disability atty. Had nausea, and vomiting for many months and then severe constipation from XXX and still have it. OFF thyroid replacement for5 months and had to follow iodide diet 30 days after the iodine and through up 3 weeks nonstop after the iodidne given, Have bad memory now when before I had excellant memory. This has just about ruined my marraige, it for sure has ruined me, there is no sex in my life, my husband is heavier each day eating himself to death. I want this living XXX to end as I have never done anything to deserve this.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    almost 5 years ago
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    radioactive iodine capsule

    Radiation

    I have the worst symptoms of hypothyroidism and no one cares how it affects me but keep adding meds and I can't afford them now. I threw up for months after. I have not lost any weight again which is due to hypothyroidism, I have had labile blood pressure, SOB, resonnating air from my throat when I attempt to scream and have a much weaker voice unable to sing as I did before.

    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    almost 5 years ago
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    Decision Point

    The care here in NV is not the best. I have been a very strong advocate for any and all my patients for 40 years and then to be mistreated and abused as I am in this journey is very wrong and just no words for it. I have decided to go to Cancer treatment Centers of America with A DR Advocate who I hope will get to the bottom of it and help me to be healthy again and live to be very old

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  5. 5
    almost 5 years ago
    hgbkokopelli's Avatar

    Other Care

    This person has yet to add any details about this experience.

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