gonewest's Journey:

Patient: Bladder Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 7 years ago, Female, Age: 68, Stage 0

  1. 1
    • gonewest
    • Experience with Bladder Cancer
    almost 7 years ago
    gonewest's Avatar

    Cancer is back/Recurred

    Oh No

    Carcinoma in situ

    0 Comments
  2. 2
    • gonewest
    • Experience with Bladder Cancer
    almost 7 years ago
    gonewest's Avatar

    Surgery

    Procedure or Surgery

    Turbt

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • gonewest
    • Experience with Bladder Cancer
    almost 7 years ago
    gonewest's Avatar

    BCG

    Drug or Chemo Therapy

    6 x bcg failed.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  4. 4
    • gonewest
    • Experience with Bladder Cancer
    almost 7 years ago
    gonewest's Avatar

    Surgery

    Procedure or Surgery

    Turbt#2

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 5
    • gonewest
    • Experience with Bladder Cancer
    almost 7 years ago
    gonewest's Avatar

    Surgery

    Procedure or Surgery

    Turbt#3

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  6. 6
    • gonewest
    • Experience with Bladder Cancer
    almost 7 years ago
    gonewest's Avatar

    bcg+interferon

    Drug or Chemo Therapy

    Failed

    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  7. 7
    • gonewest
    • Experience with Bladder Cancer
    over 6 years ago
    gonewest's Avatar

    Cancer is back/Recurred

    Oh No

    Diagnostic cystoscopy was mostly clear. Some red patches looked like inflammation from my recent treatment but the Doc is going in just to make sure. Another surgery.

    1 Comment
  8. 8
    • gonewest
    • Experience with Bladder Cancer
    over 6 years ago
    gonewest's Avatar

    Surgery

    Procedure or Surgery

    Turbt

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  9. 9
    • gonewest
    • Experience with Bladder Cancer
    over 6 years ago
    gonewest's Avatar

    Tumor Board

    Decision Point

    Bcg refractory

    0 Comments
  10. 10
    • gonewest
    • Experience with Bladder Cancer
    over 6 years ago
    gonewest's Avatar

    Other

    Decision Point

    Tumor Board consensus is cystectomy.

    0 Comments
  11. 11
    • gonewest
    • Experience with Bladder Cancer
    over 6 years ago
    gonewest's Avatar

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    • gonewest
    • Experience with Bladder Cancer
    over 6 years ago
    gonewest's Avatar

    clinical trial instead of major surgery

    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  13. 13
    • gonewest
    • Experience with Bladder Cancer
    about 6 years ago
    gonewest's Avatar

    Surgery

    Procedure or Surgery

    Cystoscopy, ureteroscopy, turbt, stent placement. No cancer in right kidney or ureter. Much cis in bladder but Dr. Chamie said he dug deep and thinks he got clear margins. Next step is healing for 4 weeks then clinical trial with cg0070.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  14. 14
    • gonewest
    • Experience with Bladder Cancer
    about 6 years ago
    gonewest's Avatar

    CG0070

    Clinical Trial

    Phase III clinical trial for non-muscle invasive carcinoma in situ

    0 Comments
  15. 15
    • gonewest
    • Experience with Bladder Cancer
    about 6 years ago
    gonewest's Avatar

    CG0070

    Clinical Trial

    Treatment 2

    0 Comments
  16. 16
    • gonewest
    • Experience with Bladder Cancer
    about 6 years ago
    gonewest's Avatar

    CG0070

    Clinical Trial

    #3.

    0 Comments
  17. 17
    • gonewest
    • Experience with Bladder Cancer
    about 6 years ago
    gonewest's Avatar

    cg0070 #4

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  18. 18
    • gonewest
    • Experience with Bladder Cancer
    about 6 years ago
    gonewest's Avatar

    CG0070 #5

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  19. 19
    • gonewest
    • Experience with Bladder Cancer
    about 6 years ago
    gonewest's Avatar

    PET/CT SCAN - All clear!!!!

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  20. 20
    • gonewest
    • Experience with Bladder Cancer
    about 6 years ago
    gonewest's Avatar

    CG0070 #6

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  21. 21
    • gonewest
    • Experience with Bladder Cancer
    almost 6 years ago
    gonewest's Avatar

    Surgery

    Procedure or Surgery

    TURBT

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  22. 22
    • gonewest
    • Experience with Bladder Cancer
    almost 6 years ago
    gonewest's Avatar

    Cancer is back/Recurred

    Oh No

    Cg0070 kept cancer from progressing. There was some recognizable cis, but less cancer than before the trial. No progression is good.

    0 Comments
  23. 23
    • gonewest
    • Experience with Bladder Cancer
    almost 6 years ago
    gonewest's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Gemcitibine instillation into bladder six times.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  24. 24
    • gonewest
    • Experience with Bladder Cancer
    over 5 years ago
    gonewest's Avatar

    Remission

    Celebration

    Carcinoma in situ gone. Never became invasive.

    7 Comments