BILLY22's Journey:

Survivor: Esophagus (Esophageal) Cancer > Adenocarcinoma

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: almost 17 years ago, Male, Age: 82

  1. 1
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    about 5 years ago
    BILLY22's Avatar

    second opinion always

    Oh No

    Oh Yes - Always get a second opinion, I was 66 yrs old when diag.

    0 Comments
  2. 2
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    about 5 years ago
    BILLY22's Avatar

    Surgery

    Procedure or Surgery

    I had a port and a fannie pack with carbo and 5fu. I had 2 - 96 hour infusions 5 weeks apart 5 weeks of radiation, 25 sessions MIE AT UPMC MAY 17 2003

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. 3
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    about 5 years ago
    BILLY22's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    CHEMO (5FU & CARBOPLATUM) - 25 SESSIONS RADIATION - LAPROSCOPIC ESOPHOGECTOMY. ALL WITH NO REAL PROBLEMS.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    5 Comments
  4. 4
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    about 5 years ago
    BILLY22's Avatar

    External radiation

    Radiation

    I had 5 weeks (25 sessions) of radiation. I called it shotgun radiation not pin point like they have today. I had no side effects. The chemo and rad eradicated the tumor, BUT YOU STILL FOLLOW THRU WITH SURGERY.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. 5
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    about 5 years ago
    BILLY22's Avatar

    Surgery

    Procedure or Surgery

    May 17 2003 had laproscopic esophogectomy (T3N1M0) at UPMC. I was in hospital 5 days, had j-tube for 3 weeks, rode bus downtown Pittsburgh on 8 th day. I had 3 dialations during 1st 2 months.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    2 Comments
  6. 6
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    about 5 years ago
    BILLY22's Avatar

    see oncoligist 2 times a yr. , surgeon 1 time a year for pet/cat scan

    Other Care

    A change in life style for sure but it gets better each day. Eating is trial and error, eventually you will be able to eat what you want just not as much. I see my oncologist 2 times a year and my surgeon 1 time each year. There is life after EC. A Survivor in remission over 12 years.

    4 Comments
  7. 7
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    about 5 years ago
    BILLY22's Avatar

    Remission

    Celebration

    Celebrate each day that the Lord gives us.

    0 Comments
  8. 8
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    about 5 years ago
    BILLY22's Avatar

    Do I want to do chemo/radation and then operation

    Decision Point

    Then I turned it over to the Lord and followed His lead. He led us to great doctors and carekeepers and continued good health. Thank God for His mercy and grace.

    0 Comments
  9. 9
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    almost 5 years ago
    BILLY22's Avatar

    my only change in life style today, is sleeping elevated

    Side Effects

    Today i would not even know i had an esophagectomy (MIE in UPMC Dr. Luketich May 17 2003). I am way down the road, still a young man I will be 78 Feb 12. The 1 side effect i still live with is sleeping elevated no real problem. A Survivor

    1 Comment
  10. 10
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    almost 5 years ago
    BILLY22's Avatar

    I did'nt lose the first hair,a gain.

    Loss

    I consider it all gain from 18 months if I do nothing or do chemo, radation and surgery has gotten me this far still in remission on 13 years and excellent quality of life.

    0 Comments
  11. 11
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    over 4 years ago
    BILLY22's Avatar

    NO, DO NOT TURN DOWN A SECOND OPINION, GO 4 IT. I was 66 yrs old when diag.

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    over 4 years ago
    BILLY22's Avatar

    T3N1M0 - MIE @ UPMC May 17 2003 by Dr. James Luketich

    Procedure or Surgery

    In hospital 5 days, rode transit bus to downtown Pitt on 8th day. In hospital 5 days , rode transit bus downtown on 8th day shopping with my wife.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  13. 13
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    over 4 years ago
    BILLY22's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    CARBOPLANTIN AND 5FU I had a port in my chest and all chemo in 2 - 96 hour sessions in fanny pack. /'/// CARBOPLATIN AND 5FU. 2 - 96 HOUR SESSIONS WITH A FANNY PACK

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  14. 14
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    over 4 years ago
    BILLY22's Avatar

    EVERY DAY IS A CELABRATION DAY, MAY 17 2003

    Celebration

    GOING FORWARD NOT LOOKING BACK, THERE IS LIFE AFTER EC. A T3N1M0 MIE, GOD FEARING SURVIVOR

    0 Comments
  15. 15
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    about 4 years ago
    BILLY22's Avatar

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  16. 16
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    over 3 years ago
    BILLY22's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
  17. 17
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    over 3 years ago
    BILLY22's Avatar

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  18. 18
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    11 months ago
    BILLY22's Avatar

    Other

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  19. 19
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    11 months ago
    BILLY22's Avatar

    Other

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  20. 20
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    11 months ago
    BILLY22's Avatar

    Side Effects

    Minimum side effects, food taste burnt , saw bugs on ceiling, sweats.

    0 Comments
  21. 21
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    11 months ago
    BILLY22's Avatar

    chemo/radation eradicated tumors completely, GREAT. Still must have the esophagectomy.

    Celebration

    Stage III T3N1M0 In remission now. Nov 2002 thru Oct 1018. Still a thankful survivor, go for it.

    0 Comments
  22. 22
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    11 months ago
    BILLY22's Avatar

    Loss

    I DIDNT LOSS ANYTHING I HAVE GAIN A THANKFUL AND HEALTHY LIFE SINCE DIAGNOSES

    0 Comments
  23. 23
    • BILLY22
    • Experience with Adenocarcinoma, Esopha...
    11 months ago
    BILLY22's Avatar

    Other

    Decision Point

    My big decision was to do chemo/radiation and then to have the operation (MIE from my second opinion at UPMC)

    0 Comments