jihorn's Journey with Squamous Cell Carcinoma, Cervical Cancer

Patient: Cervical Cancer > Squamous Cell Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 58, Stage IB

  1. 1
    • jihorn
    • Experience with Squamous Cell Carcinoma...
    over 4 years ago
    jihorn's Avatar

    Diagnosed

    Oh No

    May 7, 2012, my husband and I went to the doctors office again. I had not been feeling well; felt cramping and was now bleeding. This would be my second pap smear and 5th ultrasound. Only today was different, my doctor could SEE a tumor. May 9, 2012, the voice mail message has just commanded me to be at my doctor's office at 2:15 this afternoon. It 1pm! So much for our lunch out and antiquing in Collinsville. I knew deep down that the news was bad. I knew since Monday when I started to explore my symptoms on the internet. My husband and I drove in silence, the doctor greeted us at the door. As she started to speak I raised my hand and said this isn't good news is it. She said no. I asked her am I going to die? She said no. Heavy sigh..okay tell me anything you want now, I just know that I am going to live. May 11, 2012, we are sitting in the Oncologist Office listening to my diagnosis. Stage 1 B 1. Not bad.. radical hysterectomy. It could be a lot worse. Now I wait. Pet Scan and Cat Scan are next, meet with oncologist again, pre op physical then surgery. Four weeks from start to finish. May has been the longest month in recorded history. Everything just drags by. Work is insurmountable. Good thing I work for my husband and can leave early if I need to. Friends and family have been great. My husband has been my rock. Its June 3 I am not good at waiting, but I have perfected the art of sleeping.

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  2. 2
    • jihorn
    • Experience with Squamous Cell Carcinoma...
    over 4 years ago
    jihorn's Avatar

    Robotic assisted laparoscopic radical hysterectomy

    Procedure or Surgery

    June 6th had Robotic surgery at St Francis Hospital in Hartford, CT. The surgeons, nurses, nurses assistants and staff were amazing. I received the best care. Everyone was very empathetic. The findings of the surgery however were not as planned. I am awaiting the test results to see if my cancer has spread; it was a bit more aggressive than we originally thought. I maybe looking at radiation and chemotherapy in July.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • jihorn
    • Experience with Squamous Cell Carcinoma...
    over 4 years ago
    jihorn's Avatar

    Other Care

    I had my first visit with the radiologist on Monday, June 25, 2012. I was very overwhelmed. My husband and I sat with the Doctor for a full hour. He explained in great detail what the findings were from my surgery. I had no idea that my tumor was 4.5 cm., and it had spread to the lymph canals but not into the lymph nodes. Also that sucker covered the entire cervix. My what a wake up call. However on the bright side, I am cancer free right now! Our goal is to keep me that way. The standard procedure for Stage 1b1 cancer that is bigger than 4cm, is very deep and has crept its way towards my fragile lymphatic system is 5 weeks of chemo, 25 days of external radiation and 3 days of internal radiation for a total of 11 weeks torture. All necessary in order for me to remain healthy. I wish there was a better way. My health is paramount I really do not want a recurrence. MY goal is to be around for another 60 or so years. I have a husband to pester, and 2 beautiful daughters to haunt and bother. They need to marry and have children so I can reek havoc on their lives as well. Thats my goal and I am sticking to it. Tomorrow I see the Medical Oncologist...

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  4. 4
    • jihorn
    • Experience with Squamous Cell Carcinoma...
    over 4 years ago
    jihorn's Avatar

    External radiation

    Radiation

    Every monday I receive Chemo with 5 days of radiation. Today I am ranting. It's raining, I have a head cold, I have indigestion and I didn't sleep well. I am alive! I woke up to learn about the fatal shooting(s) in a movie theater in Aurora , CO . People are fighting for their lives because of single gun man. A Lone Wolf. Today my issues seem miniscule.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • jihorn
    • Experience with Squamous Cell Carcinoma...
    over 4 years ago
    jihorn's Avatar

    Nausea/Vomiting

    Side Effects

    Hate nausea! Now I am taking more medication ie steroids and anti nausea meds. These make me jittery and very cranky. I seem to scream at the most silly things. For example every action or sound that my husband makes.

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  6. 6
    • jihorn
    • Experience with Squamous Cell Carcinoma...
    over 4 years ago
    jihorn's Avatar

    Internal radiation (Brachytherapy)

    Radiation

    I have finished chemo and external radiation. I will not miss the steroids, anti nausea medication, shots to raise my white blood count and the overwhelming exhaustion. I will not miss the desire to eat only pasta and red meat and iceberg lettuce. I will not miss hiding under the covers because I am to tired to face anyone. I will not miss my hair falling out. I have started internal radiation. The side affects are not as extreme. I am still tired but I can do more activities. Tomorrow I will get up, take meds and make my 9am appointment, come back home and sleep. Hopefully I will be rested enough to attend a cocktail party where for the first time since May, I can have a drink!

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  7. 7
    • jihorn
    • Experience with Squamous Cell Carcinoma...
    over 4 years ago
    jihorn's Avatar

    Celebration

    This person has yet to add any details about this experience.

    1 Comment
  8. 8
    • jihorn
    • Experience with Squamous Cell Carcinoma...
    over 3 years ago
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    One year June 6, 2013

    Milestones

    It has been one year since my surgery.I am cancer free and 8months since my last treatment.

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