lujos' Journey with Invasive (Infiltrating) Ductal Carcin...

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 1 year ago, Female, Age: 65, PR Positive: Don't Know

  1. 1
    • lujos
    • Experience with Invasive (Infiltrating) ...
    almost 5 years ago
    lujos' Avatar

    Lumpectomy

    Procedure or Surgery

    I left it to my surgeon to take either the breast or do a lumpectomy. He was able to get good clean margins, so was able to do the simpler surgery. 2 out of 6 lymph nodes showed cancerous cells, but the rest clean - good news

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  2. 2
    • lujos
    • Experience with Invasive (Infiltrating) ...
    almost 5 years ago
    lujos' Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Although surgery not painful, the recovery was a lot harder than I expected. Loads of really painful swelling and bruising, couldn't sleep for days! Finally feeling better after 2 weeks.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • lujos
    • Experience with Invasive (Infiltrating) ...
    over 4 years ago
    lujos' Avatar

    CT and bone scans

    Other Care

    good news - no spread!

    0 Comments
  4. 4
    • lujos
    • Experience with Invasive (Infiltrating) ...
    almost 5 years ago
    lujos' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    First round of AC chemo this week - not as bad as I expected!

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  5. 5
    • lujos
    • Experience with Invasive (Infiltrating) ...
    almost 5 years ago
    lujos' Avatar

    Hair loss (alopecia)

    Side Effects

    2 weeks after my first AC chemo cycle, and my hair is coming out big time! First some in the drain + brush, next day loads. 3 days later, and it's looking thin, so tonight it's a buzz cut! I was ready for this, but still found it a bit upsetting.

    2 Comments
  6. 6
    • lujos
    • Experience with Invasive (Infiltrating) ...
    over 4 years ago
    lujos' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo round 2, was expecting it to be worse than cycle 1, but wasn't. Minimal nausea, some dizziness and headaches. Day 2 after chemo was very tired, so slept on the couch most of the day!

    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. 7
    • lujos
    • Experience with Invasive (Infiltrating) ...
    over 4 years ago
    lujos' Avatar

    Hair loss (alopecia)

    Side Effects

    Underarm hair has gone - not a bad side effect! Feels also like my nostril hair is going (tickles/irritates). Also, more of head hair going, so in some places I don't even have the fuzz.

    0 Comments
  8. 8
    • lujos
    • Experience with Invasive (Infiltrating) ...
    over 4 years ago
    lujos' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    chemo round 3 went well, had more side effects, but manageable. Was expecting to have my 4th and last round of AC, but my neutrophil level was too low - not happy!

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  9. 9
    • lujos
    • Experience with Invasive (Infiltrating) ...
    over 4 years ago
    lujos' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    First 2 rounds of Taxol completed.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  10. 10
    • lujos
    • Experience with Invasive (Infiltrating) ...
    over 4 years ago
    lujos' Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    First tingling in feet and hands appear, as well as bone ache.

    0 Comments
  11. 11
    • lujos
    • Experience with Invasive (Infiltrating) ...
    over 4 years ago
    lujos' Avatar

    Bone thinning (osteoporosis)

    Side Effects

    Had a DEXA scan prior to starting AI, low and behold, my T score is -4.5.

    5 Comments
  12. 12
    • lujos
    • Experience with Invasive (Infiltrating) ...
    about 4 years ago
    lujos' Avatar

    External radiation

    Radiation

    breast tissue remained fine, but had quite a bad rash/burn on my collar bone. I had accelerated whole breast radiation, with a boost to the tumor area

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  13. 13
    • lujos
    • Experience with Invasive (Infiltrating) ...
    about 4 years ago
    lujos' Avatar

    Targeted therapy

    Drug or Chemo Therapy

    Started letrozole (Femara) the day after my radiation finished. So far, in month 2, not too bad. Month 7, have quite severe pain in left hand and wrist, gripping items and opening jars difficult

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  14. 14
    • lujos
    • Experience with Invasive (Infiltrating) ...
    about 4 years ago
    lujos' Avatar

    Hand and wrist pain

    Side Effects

    Hand and wrist pain much worse now, will talk to one bout it when I see him next. A known side effect from letrozole, I fear.

    0 Comments
  15. 15
    • lujos
    • Experience with Invasive (Infiltrating) ...
    over 3 years ago
    lujos' Avatar

    Bone thinning (osteoporosis)

    Side Effects

    Bone density drop of 12% in spine

    0 Comments
  16. 16
    • lujos
    • Experience with Invasive (Infiltrating) ...
    about 1 year ago
    lujos' Avatar

    Cancer is back/Recurred

    Oh No

    Biopsy shows recurrence in same breast.

    0 Comments
  17. 17
    • lujos
    • Experience with Invasive (Infiltrating) ...
    11 months ago
    lujos' Avatar

    Mastectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  18. 18
    • lujos
    • Experience with Invasive (Infiltrating) ...
    9 months ago
    lujos' Avatar

    Axillary Lymph Node Dissection

    Procedure or Surgery

    Also had 4/11 nodes cancerous

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  19. 19
    • lujos
    • Experience with Invasive (Infiltrating) ...
    9 months ago
    lujos' Avatar

    Infection

    Side Effects

    Surgical site sepsis (e.coli) spent 5 days in the hospital on IV antibiotics

    0 Comments