MJT5's Journey with Chronic Myeloid Leukemia (CML)

Patient: Leukemia > Chronic Myeloid Leukemia (CML)

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 12 years ago, Female, Age: 62

  1. 1
    • MJT5
    • Experience with Chronic Myeloid Leukemia ...
    over 4 years ago
    MJT5's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Although Gleevec brought me into remission, the drug and I did not get along and the side effects at time were difficult. I continued to work as much as possible which assisted me in forgetting about the side effects.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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  2. 2
    • MJT5
    • Experience with Chronic Myeloid Leukemia ...
    over 4 years ago
    MJT5's Avatar

    bone marrow biopsy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • MJT5
    • Experience with Chronic Myeloid Leukemia ...
    over 4 years ago
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    Cancer is back/Recurred

    Oh No

    In 2011 after being in remission since 2009, tests reveal that I am no longer responding to Gleevec. Doing tests to see if we can use another drug.

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  4. 4
    • MJT5
    • Experience with Chronic Myeloid Leukemia ...
    over 4 years ago
    MJT5's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Am taking Tasigna 400 mg 2 x a day. Different side effects than Gleevec. Terrible rash over all of my body, loss of hair, stomach pains. Stayed on this dose for a year. Couldn't stand the side effects so quite taking for a week to see how it felt to not have side effects. My doctor and family weren't too happy.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 5
    • MJT5
    • Experience with Chronic Myeloid Leukemia ...
    over 4 years ago
    MJT5's Avatar

    bone marrow biopsy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. 6
    • MJT5
    • Experience with Chronic Myeloid Leukemia ...
    over 4 years ago
    MJT5's Avatar

    EKG

    Procedure or Surgery

    As a patient on Tasigna, my doctor has me do EKG's every 3 months to monitor my heart and how it reacts with Tasigna.

    Went as Expected: Strongly Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  7. 7
    • MJT5
    • Experience with Chronic Myeloid Leukemia ...
    over 4 years ago
    MJT5's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am now taking 200 mg of Tasigna 2 x a day and the side effects are much easier to handle. Still thankful, that after being diagnosed in May of 2008, I am able to fortunate that taking two pills daily and keeping a positive attitude allows me to stay in remission.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  8. 8
    • MJT5
    • Experience with Chronic Myeloid Leukemia ...
    over 4 years ago
    MJT5's Avatar

    bone marrow biopsy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  9. 9
    • MJT5
    • Experience with Chronic Myeloid Leukemia ...
    over 4 years ago
    MJT5's Avatar

    Clinical Trial for Shingles Virus.

    Clinical Trial

    Haven't heard any reports yet.

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  10. 10
    • MJT5
    • Experience with Chronic Myeloid Leukemia ...
    over 4 years ago
    MJT5's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Have nerve damage in fingertips and around face. Believe to be side effect of oral chemo that I've been on since 2008.

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