Jojo76's Journey with Follicular Lymphoma

Patient: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Follicular Lymphoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 6 years ago, Female, Age: 44, Stage III

  1. 1
    • Jojo76
    • Experience with Follicular Lymphoma
    over 6 years ago
    Jojo76's Avatar

    found a lump in my neck

    Oh No

    I first found a lump in my neck 5 years ago,the doctor told me I had "lump syndrome",she explained that was when someone finds a lump and panics,she told me to stop googling symptoms( I hadn't!) and sent me on my way

    1 Comment
  2. 2
    • Jojo76
    • Experience with Follicular Lymphoma
    over 6 years ago
    Jojo76's Avatar

    found a lump in my neck AGAIN!!

    Oh No

    went back to the same doctor,she reluctantly sent me for a blood test,I rang for the results,was told they were normal and didnt need to see the doctor.

    0 Comments
  3. 3
    • Jojo76
    • Experience with Follicular Lymphoma
    over 6 years ago
    Jojo76's Avatar

    Found a HUGE lump just below my ear.

    Oh No

    The doctor prescribed anti-biotics weekly for the next 3 weeks and sent me for blood tests and x-rays,both of which came back normal

    1 Comment
  4. 4
    • Jojo76
    • Experience with Follicular Lymphoma
    over 6 years ago
    Jojo76's Avatar

    My lumps were still growing!

    Oh No

    I saw a different gp who panicked when I told her I also had lumps in my groin.She said she was referring me to the hospital as she thought it was cancer. The bottom of my world fell out and I cried so hard I couldn't breathe.

    2 Comments
  5. 5
    • Jojo76
    • Experience with Follicular Lymphoma
    over 6 years ago
    Jojo76's Avatar

    bone marrow biopsy

    Procedure or Surgery

    it was unpleasant but not as bad as I feared. Feeling sore now but its totally bearable x

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    1 Comment