Bellamore's Journey:

Patient: Bile Duct (Cholangiocarcinoma) Cancer > Intrahepatic

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 68

  1. 1
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 4 years ago
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    Diagnosed

    Oh No

    Went to my holistic doctor because I was just feeling "off". He did a ton of blood work and that's when it showed up. Then he handed me over to the western doctors. Lots of tests all confirming a large mass in liver. Hometown oncologist said it was beyond his abilities. Then I went to Memorial Sloan Kettering. They diagnosed Cholangiocarcinoma, inoperable, Stage 4. Because of my deep seated belief that everything happens for a reason, I never asked "why me?" Cancer sucks and I hate it; but it's my life journey.

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  2. 2
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    the implant went without a hitch. I spent 6 days in the hospital and 3 months recovering from the surgery. But the cancer has matastized and now I am getting system chemo as well as the pump.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    So far so good. No side effects when only on the pump and very mild side effect with the systemic.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. 4
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 4 years ago
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    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  5. 5
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 4 years ago
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    Body part/function

    Loss

    I was just starting to get back into shape from a previous injury. I don't feel I am ready to go back to the gym or do much in the way of exercising. I hate having lost my waistline because of pump and swollen liver.

    0 Comments
  6. 6
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 4 years ago
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    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 4 years ago
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    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  8. 8
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    about 4 years ago
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    Cancer has spread/Metastasized

    Oh No

    My latest scan shows that I have developed three new tumors. They look like little hens clustered around the mother tumore. Sigh!!!! I have a Hepatic Artery Infusion Pump that we haven't been using while things were stable. We're pulling out the big guns nows. I know liver cancer never really goes away I was just hopping that one big "stable" tunmor would all I would have to deal with. I've been blessed, but I think this is a heads up to start getting ready for the end. And exactly where is it that you begin

    4 Comments
  9. 9
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    about 4 years ago
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    Side Effects

    I was on both the chemo pump and systemic at the same time. There came a week when I just bent over with the pain. No one could find the cause. Wasn't even sure it was cancer related. My entire diaphram was bloated and I was bent over literally. It's been two week. Treated it with Celebrex of all things.

    0 Comments
  10. 10
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 3 years ago
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    short term bile drainage stent

    Procedure or Surgery

    I feel this is just the beginning of a long process. It's not an uncommon surgery with this type of cancer, but it's not a sure thing either. Usually takes multiply attempts to get the stent placed totally internally

    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  11. 11
    • Bellamore
    • Experience with Intrahepatic, Bile D...
    over 3 years ago
    Bellamore's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments