Jouska's Journey with Invasive (Infiltrating) Ductal Carcin...

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 64, Stage IIA, HER2 Positive: Yes, ER Positive: Yes, PR Positive: No

  1. 1
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Shock and disbelief

    Oh No

    Just was not expecting the diagnosis.

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  2. 2
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Sentinel lymph node biopsy

    Procedure or Surgery

    Removed sentinel lymph node and 4 others. All negative. Yippee, precursor to double mastectomy and reconstruction

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Double Mastectomy

    Procedure or Surgery

    Had both a double masectomy and TRAM Flap reconstruction. Most of the recovery was related to the reconstruction.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Breast Reconstruction (Flap)

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    Had a port catheter installed - PowerPort. Glad I have one, but sure feels weird the first couple of weeks. Just a presence. Was a couple of months before I could sleep on that side.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  6. 6
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Docetaxel (Taxotele) and Carboplatin (Carbo). Chemo ended 10/21/14

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  7. 7
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Targeted therapy

    Drug or Chemo Therapy

    Trastuzumab (Herceptin) and Pertuzumab (Perjeta). Had severe skin rash from Perjeta. Was very ill from it and eventually had to discontinue Perjeta.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  8. 8
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Fatigue (tiredness)

    Side Effects

    General fatigue from the chemo that increased over time during treatment.

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  9. 9
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Allergic reaction

    Side Effects

    Skin rash from Perjeta (pertuzumab). We were only able to do 3 of the suggested 6 doses. Rash was bloody and my skin peeled on my face and neck/chest. It was so painful - like a horrible burn. Hopefully we got the benefit I needed from the 3 doses, but my oncologist didn't think it was wise to try again.

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  10. 10
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Birthday

    Celebration

    Turned 60 during chemo. Having a birthday is far better than not having one!

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  11. 11
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Hormone therapy

    Drug or Chemo Therapy

    Receiving Arimidex (anastrozole) for the next 5 years at least. 1 mg pill daily

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  12. 12
    • Jouska
    • Experience with Invasive (Infiltrating)...
    about 4 years ago
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    Surgery

    Procedure or Surgery

    In a routine CT scan, a mass was found on my left ovary. Surgeon removed both ovaries, uterus and fallopian tubes. Was a benign cyst, thankfully. But glad not to have those pieces parts to worry about.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  13. 13
    • Jouska
    • Experience with Invasive (Infiltrating)...
    almost 4 years ago
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    Finished treatment

    Celebration

    Had my last Herceptin today! The end of active treatment. Now I move into survivorship and monitoring mode! This will be a new chapter for me! I am excited, but a bit nervous. It will be strange to not have those every 3 week appointments. But overall very grateful to be where I am today.

    1 Comment
  14. 14
    • Jouska
    • Experience with Invasive (Infiltrating)...
    almost 4 years ago
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    My port is removed!!!

    Procedure or Surgery

    Oh YAY! I am so excited. I had my last infusion (Herceptin) on Tuesday and asked my oncologist when I could have my port removed - thinking he would say, keep it a little while longer and instead he said as soon as you want. So, out it went. Just with a local, no conscious sedation which is how it was put in. In 15 minutes I was out of the OR and 10 minutes later on my way home. A little sore today and am icing it. What a milestone!

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
  15. 15
    • Jouska
    • Experience with Invasive (Infiltrating)...
    over 3 years ago
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    Bone strengthening drugs

    Drug or Chemo Therapy

    My oncologist discussed treating me every six months with a bisphosphonate to help prevent metastisis to the bone. Studies have shown it to be very helpful although it is not yet the standard of care here in the US. First infusion of Zometa went well, only takes about 15-20 minutes. But about 8 hours later the flu-like symptoms they mentioned hit. Ran a fever and was generally miserable for about 5 hours. But then was fine. Will remember to take the following day off with the next treatment.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
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