Scooty42's Journey:

Patient: Eye Cancer > Intraocular Melanoma (also called Melanoma of the Eye)

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 5 years ago, Female, Age: 72

  1. 1
    • Scooty42
    • Experience with Intraocular Melanoma ...
    over 5 years ago
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    Misdiagnosed

    Oh No

    I have been the caretaker for an 87 year old friend for the past six years and for that reason have put my own health on the back burner. I had yearly eye exams, and I had been told that I had slow growing cataracts in both eyes, but as time progressed I began losing vision in my left eye along with bright flashes of light. I made an appointment with an opthalmologist who told me my left eye was bulging "for some reason," but he would not know until he removed the cataract. He also told me "nothing was seriously wrong." I specifically asked him if I could have a detached retina and he told me no, My vision contined to get worse, and finally I went to a retina specialist who diagnosed me with a choroidal (BIG) melanoma and detached retina, which could not be treated in my state. My first reaction wasn't "Oh No" because I am an eternal optimist, but I was furious at the opthalmologist who should have known that something was seriously wrong.

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  2. 2
    • Scooty42
    • Experience with Intraocular Melanoma ...
    over 5 years ago
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    Procedure or Surgery

    To date I have had no treatment.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • Scooty42
    • Experience with Intraocular Melanoma ...
    over 5 years ago
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    Body part/function

    Loss

    I have had three opinions, and all three doctors have recommended enucleation (removal of the eye). I am completely blind in my left eye, and the thought of having it removed brings me to tears. I feel like life will never be the same again, and there is a strong chance that even after the enucleation my life span could range from seven months to five years. Not a happy thought.

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  4. 4
    • Scooty42
    • Experience with Intraocular Melanoma ...
    over 5 years ago
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    Decision Point

    I have had many injuries and surgeries during my lifetime, the worst (I thought at the time) being burned over 30% of my body and spending three months in a burn center. In retrospect, that was a walk in the park compared to this. I have gone through the denial stage, the grief stage. and now I have reached the decision point. I am not a quitter and there are worse things than losing an eye. My greatest fear (jokingly) is that it will pop out on the table in a fancy restaurant. I am still a nervous wreck and dread July 6, which is my "enucleation day." My family has not been very supportive, which has made it much harder. I live alone, and I dread the recovery being by myself.

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  5. 5
    • Scooty42
    • Experience with Intraocular Melanoma ...
    over 5 years ago
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    Other Care

    So far I have had no care, and as I understand it enucleation is outpatient surgery. Ugh. I still search daily for alternatives to the removal of my eye, and I will continue to do that until July 6. Wish me luck!

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  6. 6
    • Scooty42
    • Experience with Intraocular Melanoma ...
    over 5 years ago
    Scooty42's Avatar

    Other Care

    This person has yet to add any details about this experience.

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