mtnraindancer's Journey:

Spouse/Partner: Colorectal (Colon) Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 4 years ago, Male, Age: 68, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IV

  1. 1
    over 3 years ago
    mtnraindancer's Avatar

    Cancer has spread/Metastasized

    Oh No

    Husband started out with surgery to remove tumor with 11 out of 17 lymph nodes positive..we went back for pet scan results which the doctor said showed cancer cells in the abdomen and a questionable spot on the lung which she didn't think they could biopsy..he was upgraded to stage 4..

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  2. 2
    over 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    too soon to tell..just finished 1st treatment and pump disconnected yesterday..no major side effects so far..resting as I type..smile

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    over 3 years ago
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    Diarrhea

    Side Effects

    My husband is on Folfox/Avastin-every two weeks with pump sent home with him on Weds and disconnect on Friday..2nd treatment...He disconnected Friday, got up smiling Saturday morning but crashed Saturday afternoon..same as 1st treatment but the crash was a little stronger and the diarrhea kicked in late Saturday night and lasted until late Sunday night..It's Monday and he's feeling better, no diarrhea and smiling!!."The whole earth is filled with awe at your wonders; where morning dawns, where evening fades, you call forth songs of joy." ( Psalm 65)

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  4. 4
    over 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    My husband had his second round of chemo (Folfox/Avistin) yesterday..He will go back on Friday to disconnect the pump he came home with. The first night we pretty much get little sleep from the combination of nerves and all of the scenarios thaty play out in your head when you lay down...So far he is outside with some carpenters we have here and kinda "supervising" the project with his pump in tow. He did have a little more sensitivity to the cold this time but he said it was mild and went away quickly..no nausea or diarrhea as of yet. The Saturday-Monday period was his "symptom" show after the first treatment..mostly fatigue (manageable) with a little diarrhea, no nausea at all. He has taken the meds as prescribed around the clock and I also got him a "Sea-Band" for each wrist that he wears pretty much constant (even sleeping) for the first week...don't know it helped but we are stacking the deck as much as possible. He is also taking glutamine twice a day and really pushing water..One beautiful day at a time...hugs to all

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    3 Comments
  5. 5
    over 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Hi and hugs to all...My husband will face his 6th round of Folfox (last two had Avastin added) this coming Wednesday..While Im grateful he hasn't dealt with nausea, the diarrhea has been a pretty much constant companion..We are keeping it down with Loperamide and Lomotil if needed..He gets treatment on Wednesday and disconnects on Friday...By either Sunday or Monday, fatigue and diarrhea set in and usually come and go with burst of energy here and there. It seems there is no rhyme or reason to what triggers the diarrhea but we have stuck to little or no sugar, no dairy, no raw veggies...When you are trying to build up a system, that kind of makes it tough..The neuropathy has gotten worse but lessens toward the end of his off week...He says it is tolerable and thank goodness we are in the spring/summer season in our area..I have had a few moments of anger, but there is no one person to be angry with...I guess the thing that frustrates me is how random this disease is and how so much of the treatment is all over the board depending on where you look..When we went for our initial consult, my husband's oncologist discouraged us from taking any additional supplements, vitamins, etc..On his last treatment, (#5), we mentioned the neuropathy and she asked if he had been taking a multi-vitamin and vitamin B complex!!! I wanted to scream but I didn't because we decided to stack the deck and he has been taking several supplements, including l-glutamine..I'm no doctor but he seems to be doing a lot better than most of his fellow patients. Why would physicians not development some type of supplement protocol to ease the suffering of these patients? I'm not going to rant and rave, but I believe our insurance, government, and pharmaceutical companies all have a hand in placing more value on the dollar than human life. It makes no sense that more study has not been done on natural food and healing verses the outrageously priced chemical treatment regimes that companies bait our universities, doctors, and government systems to push...their day will come..Until it does, thank God for places like this who foster hope, faith and healing...Hugs and good energy to all of you!!

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  6. 6
    over 3 years ago
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    Cancer is shrinking

    Celebration

    We went for my husband's 7th round of chemo today and got his CT results...his results were great...lymph nodes were normal and the two small spots on his lung had shrunk as well..His oncologist said we will do a PET scan after the last treatment and if all remains well, he will probably follow with a maintenance dose of Avastin..continuing to take one day at a time but today it's time for the "HAPPY DANCE"!!! Hugs to all...

    2 Comments
  7. 7
    over 3 years ago
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    Drug Therapy or Medication

    Just a note in hopes it may help someone else...My husband suffers from severe diarrhea after his chemo (Folfox w/Avastin)...Lomotil and Loperamide did not work for him..He was popping them like candy..His doctor started him on Sandostatin injections which worked immediately..He gives himself an injection once a day. Everyone is different and I had read that the shots were extremely painful. He said they don't hurt at all..just a little burn when he first injects it...He can finally eat and not have to run immediately to the bathroom....Hugs and wishes for a beautiful day to all of you!

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  8. 8
    almost 3 years ago
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    Lost loved one

    Loss

    It is with a heavy heart that I am sharing...I lost my beloved husband and best friend Monday to this horrible disease..He received a bronze star for his service in Vietnam but I don't think a crown studded with the most precious jewels in the world would honor the hard fight he put up to stay in this life...God called him home..I am such a mixed bag of emotions right now. We went into the hospital a week before Christmas during which time he had a feeding tube placed only to find out that the cancer had spread to his lungs, stomach and liver...I brought him home to hospice care Monday a week ago and lost him this past Monday. I can't fathom how we can genetically engineer crops, animals, and even human embryos but we can't cure this horrible disease. The cost of treatment is completely out of hand and the folks that prosper (hospitals, drug companies, cancer "centers") will all answer to a higher power one day. Until then, I will pray for all of you who have been touched in any way by this disease..Peace and strength to all of you, the suffering and their caregivers. It is a journey I would never wish on anyone, not even my worst enemy...God Bless

    9 Comments
  9. 9
    2 months ago
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    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  10. 10
    17 days ago
    mtnraindancer's Avatar

    Drug or Chemo Therapy

    It's been a while since I posted. I have been settling in to the new "normal" for me. I have two Folfox treatments with Avastin behind me and I am currently enjoying not being attached to the pump this week. This site was such a source of inspiration and comfort when my husband was going thru treatment. It is still just hard to wrap my mind around the fact that I am now on the same path. I am grateful to be able to connect and know I am not alone on the path. I have been blessed not to have had any major side effects other than cold sensitivity and a brief moment of "claw hand" when I tried to write my name. It passed quickly. My hair is shedding some but nothing major yet. The plan is for me to have two more treatments and scan again on the day after Christmas to see if I am responding to treatment and hopefully schedule surgery for a colon resection and liver resection. I truly wish everyone here love and light to see you thru. Hugs, M

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment