ROMO's Journey with Uveal Melanoma

Patient: Eye Cancer > Intraocular Melanoma (also called Melanoma of the Eye) > Uveal Melanoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 6 years ago, Female, Age: 65

  1. 1
    • ROMO
    • Experience with Uveal Melanoma
    over 4 years ago
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    Oh No

    During routine eye exam because I was having trouble seeing out of my left eye I was told I had melanoma.

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  2. 2
    • ROMO
    • Experience with Uveal Melanoma
    over 4 years ago
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    Surgery

    Procedure or Surgery

    Extremely painful after initial surgery of plaque placement.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    • ROMO
    • Experience with Uveal Melanoma
    over 4 years ago
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    External radiation

    Radiation

    Did damage as well as good to my eye

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • ROMO
    • Experience with Uveal Melanoma
    over 4 years ago
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    Surgery

    Procedure or Surgery

    Additional surgery to remove plaque.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • ROMO
    • Experience with Uveal Melanoma
    over 4 years ago
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    Decision Point

    Diagnosis confirmation at Wills eye.

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  6. 6
    • ROMO
    • Experience with Uveal Melanoma
    over 4 years ago
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    Other

    Drug or Chemo Therapy

    Avast in injections every three months continue.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  7. 7
    • ROMO
    • Experience with Uveal Melanoma
    about 4 years ago
    ROMO's Avatar

    Radio active plaque surgery or enucleation

    Decision Point

    Would make the same decision if today

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