Jay's Journey:

Survivor: Penile Cancer > Squamous Cell Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 5 years ago, Male, Age: 63

  1. 1
    • Jay
    • Experience with Squamous Cell Carcinoma, P...
    almost 4 years ago
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    Cancer is back/Recurred

    Oh No

    After successfully beating Penile cancer, I found a mass in my urethra. After biopsy my doctor informed me that I would have to have my urethra removed. The same type of cancer that has plagued me all along. Squamous cell carcinoma

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  2. 2
    • Jay
    • Experience with Squamous Cell Carcinoma, P...
    almost 4 years ago
    Jay's Avatar

    Surgery

    Procedure or Surgery

    This really was a change of life for me. My XXX was not deformed and had no pee hole. I'm now embarrassed of the way I look.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • Jay
    • Experience with Squamous Cell Carcinoma, P...
    almost 4 years ago
    Jay's Avatar

    Sexual side effects

    Side Effects

    My intimacy has all but disappeared with my partner. He is very understanding. I'm lucky. My XXX looks strange and it just doesn't function anymore. I can have an XXX but it is not worth the effort as it is really weak. I am trying to introduce other ways to be intimate like giving massages. I feel really inadequate.

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  4. 4
    • Jay
    • Experience with Squamous Cell Carcinoma, P...
    almost 4 years ago
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    The cancer is gone.

    Celebration

    I am happy that I beat the cancer again but I still have issues. My doctor says that the cancer in my bladder or other areas in this region cannot return because we have removed everything related. It's kind of a mixed celebration if at all.

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  5. 5
    • Jay
    • Experience with Squamous Cell Carcinoma, P...
    almost 4 years ago
    Jay's Avatar

    Body part/function

    Loss

    With the loss of my urethra, I, at first, felt like I had lost my manhood. It has been really hard to regain my self esteem as a man. I have realized at this point that sex has not much to do with being a man. I have many other aspects of being a man that is much more important.

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