Razmataz's Journey:

Patient: Endometrial (Uterine) Cancer > Uterine Leiomyosarcoma

Patient Info: Receiving hospice or palliative care, Diagnosed: almost 5 years ago, Female, Age: 51, Stage IV

  1. 1
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    Razmataz's Avatar

    Hysterectomy

    Procedure or Surgery

    My uterus was majorly swollen so they decided to take it out. Said it was fibroids

    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. 2
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    Razmataz's Avatar

    found out that I had cancer

    Oh No

    A week after surgery the surgeon called me to tell me that I had cancer. I freaked out and began sobbing. It was leiomyosarcoma...

    0 Comments
  3. 3
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    Razmataz's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I went to an oncologist 2 weeks after surgery. They said that it was an aggressive cancer and has a high reoccurrence rate. I cried that night and couldn't stop. She said I would start chemo in 2 weeks do 6 rounds of 3. It is the hardest things physical that my body has had to endure...

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    Razmataz's Avatar

    Nausea/Vomiting

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  5. 5
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    Razmataz's Avatar

    Hair loss (alopecia)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    Razmataz's Avatar

    blood clots in lungs

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    Razmataz's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. 8
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    Razmataz's Avatar

    Hospitalization

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  9. 9
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    Razmataz's Avatar

    Internal radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  10. 10
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    about 4 years ago
    Razmataz's Avatar

    Health insurance issue

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  11. 11
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    almost 4 years ago
    Razmataz's Avatar

    Found a new little lump in my abdominf

    Oh No

    Found a little lump and it scared me. Also thought therr might be a slight possibility that it was scar tissue.

    0 Comments
  12. 12
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    almost 4 years ago
    Razmataz's Avatar

    Its ok

    Celebration

    I got to the dr to check it out. Its just scar tissue. Whew

    0 Comments
  13. 13
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    almost 4 years ago
    Razmataz's Avatar

    Remission

    Celebration

    I am 6 months in remission. Still everything is clear...

    1 Comment
  14. 14
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    over 2 years ago
    Razmataz's Avatar

    Cancer is back/Recurred

    Oh No

    having pain in left side. Kept being told it was diverculitis... Surprise its not... my cancer is back

    0 Comments
  15. 15
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    over 2 years ago
    Razmataz's Avatar

    Surgery

    Procedure or Surgery

    My incision did not heal due to previous radiation. Therefore my wound has to heal from the inside out...

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  16. 16
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    over 2 years ago
    Razmataz's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have weekly chemo. Day 1 two chemo's one which makes me so ill for about a week. Day 8 I only have to have one chemo. It has minimal side effects... Day 15 is blood only... Get a week off. I get to do this 8x's

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  17. 17
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    almost 2 years ago
    Razmataz's Avatar

    Cancer has spread/Metastasized

    Oh No

    Just got told 3 years after my original diagnosis surgery that my cancer has gone past the ovaries and into my sacrum. so now its in the bones...urg...

    0 Comments
  18. 18
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    over 1 year ago
    Razmataz's Avatar

    External radiation

    Radiation

    10 days of radiation stopped the growth but did not shrink or take away the pain

    Painless Experience: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  19. 19
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    over 1 year ago
    Razmataz's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    still doing latruvo along with the bone strengthener

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  20. 20
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    over 1 year ago
    Razmataz's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  21. 21
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    over 1 year ago
  22. 22
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    over 1 year ago
    Razmataz's Avatar

    External radiation

    Radiation

    I had 10 days of radiation in December while continuing chemotherapy. Did not relieve pain as they thought it would but did stop the growth.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  23. 23
    • Razmataz
    • Experience with Uterine Leiomyosarcoma
    about 1 year ago
    Razmataz's Avatar

    Surgery

    Procedure or Surgery

    Had tailbone and part of sacrum removed. The intense pain immediately dissipated.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments