BobbyO41's Journey with Clear Cell Sarcoma

Survivor: Sarcoma - Adult Soft Tissue Cancer > Clear Cell Sarcoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 9 years ago, Male, Age: 49

  1. 1
    • BobbyO41
    • Experience with Clear Cell Sarcoma
    almost 5 years ago
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    Diagnosed

    Oh No

    After ignoring what I thought was a cyst (size of large strawberry) on the back side of my right thigh for 18+ months I finally had scheduled an appointment to have it removed. Turned out to be a tumor growng outward. I was diagnosed the same week that my former mother in-law was burried after losing her battle wih liver cancer. My kids had jst lost one of their grandmothers to this disease and now I had to inform them I to now have a form of cancer.

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  2. 2
    • BobbyO41
    • Experience with Clear Cell Sarcoma
    almost 5 years ago
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    Surgery

    Procedure or Surgery

    Had surgery in June of 2008 to remove tumor from back of right thigh. Doctor's needed to do a skin flap to cover vacant area as opposed to doing a skin graph.

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • BobbyO41
    • Experience with Clear Cell Sarcoma
    almost 5 years ago
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    External radiation

    Radiation

    Started radiation treatments in December 2008. During last week of treatment I became full diabetic (was pre-diabetic before). Developed lymphedma in my right leg. On going issue.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • BobbyO41
    • Experience with Clear Cell Sarcoma
    almost 5 years ago
    BobbyO41's Avatar

    Finished treatment

    Celebration

    All done! No more getting zapped and having to wear those skimpy gowns with my XXX hanging out! :)

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  5. 5
    • BobbyO41
    • Experience with Clear Cell Sarcoma
    almost 5 years ago
    BobbyO41's Avatar

    Lymphedema

    Side Effects

    Lymphedema in right leg. It's a pain in the XXX!!! My calf and ankle swell up and become 3 times their normal size! Have to deal with leg fatigue and constent achiness. Not to mention people staring when I wear shorts.

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  6. 6
    • BobbyO41
    • Experience with Clear Cell Sarcoma
    almost 5 years ago
    BobbyO41's Avatar

    Work problems

    Oh No

    Do to leg issues, can't go back to former job. Jobless since January 2009. Working side jobs to get by, along with the genorosity and support of frids and family.

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  7. 7
    • BobbyO41
    • Experience with Clear Cell Sarcoma
    almost 5 years ago
    BobbyO41's Avatar

    Relationship

    Celebration

    After doing the singles scene and jumping around, I finally met someone who can put up with my XXX and give it right back. Things are looking good!! Now I have to find steady work and continue moving forward!!

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