fredntan's Journey with Mixed Tumors, Breast Cancer

  1. 1 Procedure or Surgery Icon Procedure or Surgery
  2. 2 Procedure or Surgery Icon Procedure or Surgery
  3. 3 Procedure or Surgery Icon Procedure or Surgery
  4. 4 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  5. 5 Procedure or Surgery Icon Procedure or Surgery
  6. 6 Radiation Icon Radiation
  7. 7 Decision Point Icon Decision Point
  8. 8 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  9. 9 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  10. 10 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  11. 11 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  12. 12 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  13. 13 Drug or Chemo Therapy Icon Drug or Chemo Therapy
    ???
  14. 14 Clinical Trial Icon Clinical Trial
  15. 15 Side Effects Icon Side Effects
  16. 16 Side Effects Icon Side Effects
  17. 17 Side Effects Icon Side Effects
  18. 18 Side Effects Icon Side Effects
  19. 19 Side Effects Icon Side Effects
  20. 20 Side Effects Icon Side Effects
  21. 21 Side Effects Icon Side Effects
  22. 22 Side Effects Icon Side Effects
  23. 23 Side Effects Icon Side Effects
  24. 24 Side Effects Icon Side Effects
  25. 25 Side Effects Icon Side Effects
  26. 26 Celebration Icon Celebration
  27. 27 Celebration Icon Celebration
  28. 28 Celebration Icon Celebration
  29. 29 Celebration Icon Celebration
    ???
  30. 30 Loss Icon Loss
    Job

Patient: Breast Cancer > Mixed Tumors

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 8 years ago, Female, Age: 52, Stage IV, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Axillary Lymph Node Dissection

    Procedure or Surgery

    I was at Sloan Kettering for initial mastectomy. Care was awful there. Pain in arm nerve did hurt after sx about a year where it couldnt be touched. Torture expander that I had for 9 months was unbearable.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. 2
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Breast Reconstruction (Flap)

    Procedure or Surgery

    I had great care after my DIEP at Methodist in San Antonio. Excellent pain control. felt healing to get my breasts back. wasn't easy

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I worked as IR nurse many years sedating patients for ports. never would we give out pain meds. But I was probably first. ouch that hurt. My IR doc had to do the left and these can be more difficult

    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    take Xegeva. no side effects

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. 5
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Mastectomy

    Procedure or Surgery

    Same procedure at sloan kettering. minimal pain control here. I had a single mastectomy with 300ml in tissue expander. But PCAs were reserved for bilateral mastectomies my nurse told this nurse in recovery

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  6. 6
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    External radiation

    Radiation

    No one told me that since I had tissue expander that planning would take a hour-my arm was up in one position for hr. excrutiating pain. i have had pnuemonia like three times

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  7. 7
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    I had to move to Texas for individualized care

    Decision Point

    my oncologists in Va wouldnt scan or do blood work after I was done with stage 3 BC. They said its too much radiation. But I questioned other cancer patients who went to same doc and they had lung or bladder cancer and they got yearly scans

    0 Comments
  8. 8
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    chemo is hard

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  9. 9
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Depression medicine

    Drug or Chemo Therapy

    These did help me. never much hot flashes either

    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  10. 10
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Nausea medicine

    Drug or Chemo Therapy

    I prefer phenergan over zofran if i have nausea

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  11. 11
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Pain medicine

    Drug or Chemo Therapy

    I can't do pain meds. chemo gives me such bad constipation, its just not worth it for me. makes me itch too

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  12. 12
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Targeted therapy

    Drug or Chemo Therapy

    your talking afinitor. it gives me fatigue. but its keeping cancer NED

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  13. 13
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  14. 14
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    vaccine trial in 2012-2013 in DC

    Clinical Trial

    I was in placebo group. you get to find out when you progress and can;t continue in trial

    0 Comments
  15. 15
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Chemo brain

    Side Effects

    memory problems, hard to focus, can't read book anymore. mind wanders and i only read few pages

    0 Comments
  16. 16
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Constipation

    Side Effects

    i dont have this now, but when I was on tougher chemo it was daily issue

    0 Comments
  17. 17
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Fatigue (tiredness)

    Side Effects

    I tire easily

    0 Comments
  18. 18
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    High blood pressure (hypertension)

    Side Effects

    side effects of my drugs

    0 Comments
  19. 19
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Memory changes

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  20. 20
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Mouth sores

    Side Effects

    at times. cant eat spicy foods anymore

    0 Comments
  21. 21
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Pain

    Side Effects

    rt axillary post mastetomy. its minimal but annoying

    0 Comments
  22. 22
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Skin changes

    Side Effects

    sores on arms slow to heal. then annoying bumps on top of head. feels like acne up there

    0 Comments
  23. 23
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Sexual side effects

    Side Effects

    vaginal atrophy

    0 Comments
  24. 24
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Thinking problems

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  25. 25
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Depression/Anxiety

    Side Effects

    no more anxiety. depression at times

    0 Comments
  26. 26
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Anniversary

    Celebration

    went to PR for big anniversary trip

    0 Comments
  27. 27
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Remission

    Celebration

    NED 2 yrs this spring

    1 Comment
  28. 28
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Birthday

    Celebration

    in few hrs i will be 49

    1 Comment
  29. 29
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  30. 30
    • fredntan
    • Experience with Mixed Tumors, Breast ...
    over 3 years ago
    fredntan's Avatar

    Job

    Loss

    had to leave virginia and family and job as nurse for individualized cancer tx

    0 Comments