fredntan's Journey with Mixed Tumors, Breast Cancer

I was at Sloan Kettering for initial mastectomy. Care was awful there. Pain in arm nerve did hurt after sx about a year where it couldnt be touched. Torture expander that I had for 9 months was unbearable.

I had great care after my DIEP at Methodist in San Antonio. Excellent pain control. felt healing to get my breasts back. wasn't easy

I worked as IR nurse many years sedating patients for ports. never would we give out pain meds. But I was probably first. ouch that hurt. My IR doc had to do the left and these can be more difficult

take Xegeva. no side effects

Same procedure at sloan kettering. minimal pain control here. I had a single mastectomy with 300ml in tissue expander. But PCAs were reserved for bilateral mastectomies my nurse told this nurse in recovery

No one told me that since I had tissue expander that planning would take a hour-my arm was up in one position for hr. excrutiating pain. i have had pnuemonia like three times

my oncologists in Va wouldnt scan or do blood work after I was done with stage 3 BC. They said its too much radiation. But I questioned other cancer patients who went to same doc and they had lung or bladder cancer and they got yearly scans

chemo is hard

These did help me. never much hot flashes either

I prefer phenergan over zofran if i have nausea

I can't do pain meds. chemo gives me such bad constipation, its just not worth it for me. makes me itch too

your talking afinitor. it gives me fatigue. but its keeping cancer NED

I was in placebo group. you get to find out when you progress and can;t continue in trial

memory problems, hard to focus, can't read book anymore. mind wanders and i only read few pages

i dont have this now, but when I was on tougher chemo it was daily issue

I tire easily

side effects of my drugs

at times. cant eat spicy foods anymore

rt axillary post mastetomy. its minimal but annoying

sores on arms slow to heal. then annoying bumps on top of head. feels like acne up there

vaginal atrophy

no more anxiety. depression at times

went to PR for big anniversary trip

NED 2 yrs this spring

in few hrs i will be 49

had to leave virginia and family and job as nurse for individualized cancer tx