Gymmom's Journey with Diffuse Large B-Cell Lymphoma

Patient: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Diffuse Large B-Cell Lymphoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 4 years ago, Female, Age: 66, Stage IV

  1. 1
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    over 3 years ago
    Gymmom's Avatar

    Surgery

    Procedure or Surgery

    Groin surgery for biopsy. Stage IV NHL diffuse large b-cell.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  2. 2
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    over 2 years ago
    Gymmom's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Best decision I made.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. 3
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    over 3 years ago
    Gymmom's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    R-EPOCH mostly at home with a pump to my port. Six rounds lasting 5 days each round. Six lumbar punctures for methotrexate into my lower spine.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    over 2 years ago
    Gymmom's Avatar

    Self injections

    Other Care

    Had to make peace with giving myself neupogen injections for 7 days following each round of treatment. That took a while.

    1 Comment
  5. 5
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    over 3 years ago
    Gymmom's Avatar

    Chemo brain

    Side Effects

    Low red cell count requiring blood transfusions (a total of seven transfusions of two units each). Chemo brain, constipation, neuropathy in hands and feet, mouth sores twice, only slight nausea.

    1 Comment
  6. 6
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    over 2 years ago
    Gymmom's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Required a total of 14 units of blood over the course of chemo treatment.

    0 Comments
  7. 7
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    over 3 years ago
    Gymmom's Avatar

    Remission

    Celebration

    Hoping it will last a while. Hair is coming back.

    2 Comments
  8. 8
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    over 2 years ago
    Gymmom's Avatar

    Remission

    Celebration

    Had another CT on January 26th, and it shows I'm still in remission. :-) Fifteen months and counting!

    4 Comments
  9. 9
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    11 months ago
    Gymmom's Avatar

    Remission

    Celebration

    July 27th clear scan!!

    2 Comments