RickinFla's Journey:

Patient: Colorectal (Colon) Cancer > Adenocarcinoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 9 years ago, Male, Age: 65, KRAS mutation positive: Yes, BRAF mutation positive: No

  1. 1
    • RickinFla
    • Experience with Adenocarcinoma, Colo...
    over 9 years ago
    RickinFla's Avatar

    Oh No

    Yesterday June 13, 2012 I got the "word" that I have Stage IV colorectal cancer. My colorectal surgeon gave my wife and I the bad news at my first postoperative appointment. On May 31, 2012 I had surgery to relieve a “partial” obstruction in my colon. That obstruction was identified in a CT scan taken in the early morning hours of May 26. It revealed a 4.1 x 4.1 “apple core shaped” lesion in my colon, a lesion that is characteristic of adenocarcinoma of the colon. Because of the Memorial Day Holiday, a weekend, and my surgeon’s absence at a conference, I had to wait two weeks to get the pathology report. I’m not sure if that’s a normal timeframe or not. I can, however, say that when my surgeon looked at the pathology report, he did a double take and appeared taken aback, as it it was completely unexpected. My surgeon recommended an oncologist and set up an appointment for me this Monday June 18 and a PET scan for me the next day on Tuesday June 19. I’ve also set up an appointment for a “second opinion” at the Moffit Cancer Center in Tampa Florida for Friday June 22. Again, being new to this whole thing, I’m unsure if these time frames are typical as I always thought cancer diagnosis and treatment proceeded much more rapidly. What is particularly distressing is that up until this diagnosis I did everything in accordance with the recommendations. At 49, I had a colonoscopy as my family had no history of colon cancer. At that colonoscopy, the Gastroenterologist found some polyps which caused him to put me on a colonoscopy schedule of every three years. I had another at 52 and another at 55, on June 8, 2011. At the June 8, 2011 colonoscopy I received another clean bill of health with first line of the Gastroenterologist's written report to me stating unequivocally, "no cancers." Despite having those colonoscopies, now I find myself with an incurable cancer that is likely to shorten my lifespan. Thus far, no one has explained how I could wind up with a 4.1x4.1 cm tumor in my colon less than 12 months after a clean bill of health from a colonoscopy, supposedly the “gold standard” for early detection of colorectal cancer. I will say that every physician and nurse I’ve said this to, including three surgeons, has done a double take, raised their eyebrows, or asked me to say that again. Hopefully, at some point, I’ll get an answer to the question of how I wound up with this tumor less than a year after a clean bill of health on my colonoscopy. In another post, I’ll talk about how I wound up in the hospital and having surgery. But, if anyone has any authoritative answers regarding how I would up with Stage IV colorectal cancer less than one-year after a clean bill of health on a colonoscopy, I would appreciate hearing them.

    1 Comment
  2. 2
    • RickinFla
    • Experience with Adenocarcinoma, Colo...
    almost 9 years ago
    RickinFla's Avatar

    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    Surgery was in May 31, 2012 and went as well as could be expected. Recovered well and easily from procedure.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree