threejs' Journey with Squamous Cell Carcinoma, Esophagus Ca...

Spouse/Partner: Esophagus (Esophageal) Cancer > Squamous Cell Carcinoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 4 years ago, Male, Age: 43

  1. 1
    • threejs
    • Experience with Squamous Cell Carcinom...
    over 4 years ago
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    Diagnosed

    Oh No

    blindsided. he thought it was a little heartburn 8 weeks ago and 6 weeks later it's esophageal cancer. never smoked. rarely had a beer. he has common variable immune deficiency and the doctors say that is the cause. devastated.

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  2. 2
    • threejs
    • Experience with Squamous Cell Carcinom...
    over 4 years ago
    threejs' Avatar

    Treatment or not

    Decision Point

    two EGDs, PET and CTs show large mass in his esophagus and many suspicious nodes throughout his body. he has always had enlarged nodes relative to his auto immune issues diagnosed 12 years ago. Past node biposies before his immune diagnosis always turned up negative. Now, the doctors say two lymph node biopsies next week (one in leg and one in lung). If either are positive, they only give us palliative care options. If both are negative, the doctors say we can then discuss curative approach. UPDATE: Biopsies all came back negative so proceeded with chemoradiation therapy. Completed treatment.

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  3. 3
    • threejs
    • Experience with Squamous Cell Carcinom...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • threejs
    • Experience with Squamous Cell Carcinom...
    over 4 years ago
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    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • threejs
    • Experience with Squamous Cell Carcinom...
    over 4 years ago
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    Fever

    Side Effects

    This person has yet to add any details about this experience.

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  6. 6
    • threejs
    • Experience with Squamous Cell Carcinom...
    over 4 years ago
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    Nausea/Vomiting

    Side Effects

    This person has yet to add any details about this experience.

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  7. 7
    • threejs
    • Experience with Squamous Cell Carcinom...
    over 4 years ago
    threejs' Avatar

    Weight loss

    Side Effects

    This person has yet to add any details about this experience.

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  8. 8
    • threejs
    • Experience with Squamous Cell Carcinom...
    over 4 years ago
    threejs' Avatar

    NG Feeding Tube

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  9. 9
    • threejs
    • Experience with Squamous Cell Carcinom...
    over 4 years ago
    threejs' Avatar

    Infection

    Side Effects

    CMV infection. Hospitalized 5 days. PICC line in place for antiviral therapy x 2 months then transition to oral antiviral pill duration TBD

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