Denise's Journey:
- 1 Oh No Icon Oh No
- 2 Procedure or Surgery Icon Procedure or Surgery
- 3 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 4 Procedure or Surgery Icon Procedure or Surgery
- 5 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 6 Side Effects Icon Side Effects
- 7 Side Effects Icon Side Effects
- 8 Side Effects Icon Side Effects
- 9 Oh No Icon Oh No
- 10 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 11 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 12 Other Care Icon Other Care
- 13 Radiation Icon Radiation
- 14 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 15 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 16 Side Effects Icon Side Effects
Patient: Breast Cancer
Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 49, Stage Recurrent, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes
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Experience Icon Descriptions
Procedure: Drag this icon to show a procedure.
Radiation: Drag this icon to show a specific radiation therapy experience.
Drug Therapy: Drag this icon to show a specific drug therapy experience.
Clinical Trial: Drag this icon to show a clinical trial experience.
Side Effect: Drag this icon to show experience with a specific side effect.
Oh No: Drag this icon to show when something bad happened (e.g., cancer’s back, lost job).
Celebration: Drag this icon to show when something good happened (e.g., last treatment, hair is back).
Loss: Drag this icon to show a time of loss (e.g., lost hair, lost loved one).
Decision Point: Drag this icon to show a time when you had to make a tough decision.
Other Care: Draft this icon to show a time when you needed other care (e.g., hospice, psychotherapy).
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Cancer is back/Recurred
Oh No
I was having trouble breathing for 6 months, my onco was "watching" the spot on my lung via CT scans every 3 months. Finally referred me to a pulmonary specialist. He ordered a biopsy. It's breast cancer.
Had a PET scan, revealed it was in numerous places.
Procedure or Surgery
This person has yet to add any details about this experience.
Chemotherapy
Drug or Chemo Therapy
I just started Xeloda. They want to try this first since the port didn't work out so well when I had cancer in 2007. Did not work.
Surgery
Procedure or Surgery
Had port put in.
Chemotherapy
Drug or Chemo Therapy
Had one infusion of Ixempra, excruciating side effects-neuropathy, mouth sores, body pain...second infusion I had an allergic reaction.
Mouth sores
Side Effects
Very bad mouth sores from Ixempra. Used Magic Mouthwash to heal them up, but dr was slow to prescribe it for me!
Nerve damage (peripheral neuropathy)
Side Effects
Extreme neuropathy in feet. Couldn't walk.
Allergic reaction
Side Effects
The Ixempra uses the same mix as Taxol, which I had an allergic reaction to in 2007. The doctors failed to check the mix! Ugh!
Problem with doctor
Oh No
Since the onc and pharm tech missed the fact I was allergic to the chemo they gave me, I decided to go to the CTCA and do co-managed care.
Chemotherapy
Drug or Chemo Therapy
Ibrance, Faslodex and Xgeva. Worked for ten months.
Hormone therapy
Drug or Chemo Therapy
Faslodex shots.
Psychosocial
Other Care
I started therapy after the Ibrance stopped working to deal with depression and possible end of life issues.
External radiation
Radiation
I had breath controlled radiation to a tumor on my left hilar bronchial area--it was pushing on my air way and making it difficult to breath. Had to hold my breath during the radiation--was very difficult.
Chemotherapy
Drug or Chemo Therapy
I started Afinitor in November. Rash and coughing.
Hormone therapy
Drug or Chemo Therapy
Started Aromasin with the Afinitor in November
Allergic reaction
Side Effects
Extreme rash, had to stop and take steroids to calm the rash down.