Muffin55's Journey with Gastrointestinal Stromal Tumor (GIST)...

Patient: Colorectal (Colon) Cancer > Gastrointestinal Stromal Tumor (GIST)

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: almost 3 years ago, Female, Age: 56, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IV

  1. 1
    • Muffin55
    • Experience with Gastrointestinal Stro...
    over 2 years ago
    Muffin55's Avatar

    The decision point I had was whether or not I wanted to acknowledge that i had cancer,and whether or not I wanted to have chemo,or go with natural herbal treatments.

    Decision Point

    I was sure if I wanted to actually relate who I was with what had been found in my ascending colon. I was terrified and felt as if God had left me. This was an overwhelming thing for me. I mean, I ate right I thought. I have healthy kidneys, and my bowels were sometimes irregular. But I never thought that this was maybe a beginning to what I was to go through. What a load to have to have placed on me. I then began to fault everything. I was totally out of control. And when I told my family they were not responding the way that I thought. It was as if they couldn't believe that this had happened to me. but guess what, yes it was. So after the diagnoses, I wanted to know what herbal, or natural healing I could get. That was a long drawn out process because I didn't have money to buy what I needed. It costs to purchased this kind of natural medicine. But my sisters came to visit me and brought along with them some of what I wanted, and I have been taking these faithfully. Now I know that it takes a longer period of time for these to work, but I believed in my heart that they were doing what they were supposed to do. I prayed to God that this would work, and get this cancer away from my body. They were working, but I wasn't satisfied with that because I wanted it to work much faster to keep me from having to take chemo. I just didn't want to do chemo. Heck, I didn't want cancer inside of me either. but I eventually made the decision to do chemo. God, I pray that this works. I trust Him explicitly, and I pray for healing throughout this process.

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  2. 2
    • Muffin55
    • Experience with Gastrointestinal Stro...
    over 2 years ago
    Muffin55's Avatar

    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    Well, my doctor (Oncologist) really has had patience with me through the first stages of this, and he has been a rock. I told him that I trust him, but mostly that I trusted God more. I found him to be pleasant in mannerisms and wanted him to do my surgery. Needlessly to say, I didn't trust the gastroenterologist( who referred me to my now oncologists), because he scared the wits out of me. I didn't like the way he came at me with what he had found. He was the one who gave the diagnoses, in which his approach left me with scars in the mind. I was asked the question as of to whom I wanted to do my surgery, and I was giving two choices. It was my second choice that led me to the best oncologist as far as I am concerned. The surgery went well, and it's something that I 'll never forget. The nursing staff was the best yet.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • Muffin55
    • Experience with Gastrointestinal Stro...
    over 2 years ago
    Muffin55's Avatar

    Cancer has spread/Metastasized

    Oh No

    After the surgery to remove part of my ascending colon, and a liver biopsy which came later in the months to follow, I was told that the tumor on my liver was gone. I was excited because that was the last place that I was expecting any of it to have traveled. Didn't want it traveling at all actually. Well, this news just brought me from a great moment to one of why all over again. I asked the Lord why and quickly realized that needed to stop getting so frustrated at this. Now the soul-searching came in, and I needed real time prayer. This is why this had bothered me from the beginning. I have three siblings who have already passed behind cancer, and this was XXX me off that this stuff was determined to undermine my faith in my god, and tried to take me down a path that I wasn't ready to go. So I began to pray,abelieveGod for the small things which in turn started showing me that those bigger things were His to handle. And He heard me. I asked Him to be my guide, my healer, my source of everything good, wise, and holy. Now, I want you to know that has eased my mind tremendously. I cannot allow this disease, to disease my mind. God's got this, and I am already alright.

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  4. 4
    • Muffin55
    • Experience with Gastrointestinal Stro...
    over 2 years ago
    Muffin55's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I will comment on the effects once it begins. I don't see any valleys here. ;) Oh I was given Avastin, and three other meds. Can't remember their names at this moment. But will do so when I come back to edit this.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  5. 5
    • Muffin55
    • Experience with Gastrointestinal Stro...
    over 2 years ago
    Muffin55's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    I am using a natural, or herbal remedy called Par d' arco, Essiac Tea, Apple and Grape seeds when available. Turmeric,Ginger, and honey.

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  6. 6
    • Muffin55
    • Experience with Gastrointestinal Stro...
    over 2 years ago
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    Lost loved one

    Loss

    I think that I mentioned losing three of my siblings to cancer with a scare to myself, my now older brother(who recovered), and my younger brother(who also has recovered).And me on the path to healing and wellness. My oldest brother died from prostate cancer, my oldest sister from pancreatic cancer, and the other sister to colon cancer. Yes my fight is real,and I intend through God, to win!

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  7. 7
    • Muffin55
    • Experience with Gastrointestinal Stro...
    over 2 years ago
    Muffin55's Avatar

    Milestones

    Hi again,..please don't get tired of me posting. I am so happy to be here and to share what is happening to me. I am here for you guys also when I have time. It seems that time has not been on my side,and that's okay too. Right now i want to mention a very important milestone in my life. I am now down to 124 from 500's on my CEA level. I don't feel as well as I did,but something wonderful is going on. I am still taking granax shots,but i also take vitamins,and still do natural herbs. My doctor is amazed at this,and he has starting to wane me from as much chemo. But that's just me talking. But it seems that way. That is a great thing. I am loving my Lord for He has not taken His hands off me. He is making this journey to work out the way He desires,and it's all for His glory,amen? Love you guys,and i am praying we all get cured,and never to run this race again. You all are in my prayers.

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