DorkGoddess' Journey:

Patient: Cervical Cancer > Adenocarcinoma

Patient Info: Diagnosed: over 5 years ago, Female, Age: 44, Stage IIIB

  1. 1
    almost 5 years ago
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    Birthiversary!

    Celebration

    My husband and I met on his birthday and then, we were engaged and married on my birthday! I call it my Birthiversary or AnniBday! I just celebrated my 39th Bday and our 2nd Anniversary! Thank you for sharing in our story! heather.parrst.com

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  2. 2
    almost 5 years ago
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    External radiation

    Radiation

    Well, I had a double dose of external radiation Jan-Mar 2012. The first round wasn't soo bad. Just a few times of nausea and diarrhea. But, then my doc at MD Anderson said that my radiation oncologist at Arlington Cancer Center didn't create a big enough field. So, then I had to have a second round in the upper region of the abdomen and stomach. That gave me sooooo many side effects: I had nausea, gas, heartburn, bloating, diarrhea, constipation, vomiting, achey bones, etc... Thru both rounds, I have felt fatigue, weary, weak, bone-tired and that still hasn't gone away!

    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    almost 5 years ago
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    Internal radiation (Brachytherapy)

    Radiation

    From what I have been told, there are 2 different internal radiation treatments. One is high dose...day procedure and then done. The other is low-dose, weekend hospital stay and then done. I tried the high dose, (at UT Southwestern...the doc and nurses there were great) but apparently my body did not want it to happen. It fought even under sedation. So, I had to do the low-dose. I went to MD Anderson in Houston for the low-dose. That is the worst thing I have ever been thru. I had 2 rounds of that. One weekend....2 weeks off....and then back for another weekend! That means, first you do all of your bloodwork and checking in on Thursday. Before you go in on Friday, you have to give yourself an enema the night before to ensure that your colon is clean. (luckily, I had my husband and he loves me very much!!!) You go in on Friday...they implant the seeds, take you to your room (which has a thick steel door)...and then you are radiated 15min every hour for 48 hours! You can only sit up 30 degrees....which really isn't that much! and for that 15min...your in the room alone because everyone has to leave while you are being radiated. I am a weak person when it comes to pain pills....I take Tramadol, a very mild pain pill. While experiencing this, they had me on a dilaudid pain drip. Well, that means every time I get vertical, I Puke! So, during the 2 weekends of treatments I didn't EAT ANYTHING at all! Lost ALL of my muscle mass and 25 pounds! Throughout those weekends I couldn't bathe, I couldn't go to the bathroom. I had a catheter (which was very painfull to me...my bladder was very sensitive...hurt every time it was touched or moved...it had to be taped to my leg). They also gave me a pill which kept me from pooping all weekend. So, I had a hard time recovering from constipation afterwards. Just all around the roughest I have ever experienced!!!

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    almost 5 years ago
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    Chemo brain

    Side Effects

    Yes I got this! I get confused! I forget! I space! I mix things up!

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  5. 5
    almost 5 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    I had been told that I was anemic before I was diagnosed with cervical cancer. And now after internal & external radiation along with chemo (cisplatin), I am trying to keep my counts up....but it's a roller-coaster ride. Since I have been diagnosed up until now, (Dec 2011-June 2012), I have received blood 8 times. Right now, my counts are going up. But it makes you even more tired! I didn't realize how tired anyone could be...

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  6. 6
    almost 5 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    Ok...well, I have a Groshong! That means that I have a hole with a wire/tube coming out as it is connected to my veins. And then it splits and has 2 caps. (there are pics on my blog heather.parrst.com) It is covered by bandages. Plus side: 1) They withdraw blood from there. I don't get poked anymore.(and believe me..I am happy about that!) Negative side: 1) It can't get wet! I can't shower! I have to cover it with Press-n-seal, wash my hair while bending over the tub. ( the kitchen is too small for me to wash in the sink) Then, I wrap my hair up in a towel and run a small bubble bath to bathe! 2) My skin is sensitive. I have to have the dressing changed twice a week. My skin has a love/hate relationship with adhesive. They have an extremely bonding agreement and it sucks! Sometimes, my skin is bright red. Sometimes, the top layer of skin is removed and there are small sores. BUT I DON'T GET POKED AND THAT'S OKAY! I'll deal with it! But it is hard to go thru a Texas summer like this!

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  7. 7
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Jan-Mar 2012 I received the chemo drug, Cisplatin. The only way I would describe the feeling after chemo is that I didn't feel right in my skin! Just was totally uncomfortable in my skin. My skin hurt, my bones hurt, nothing tasted right...didn't want to drink or eat anything. I ate alot of Fruit popsicles, applesauce, bananas and peanut butter sandwiches. That lasted for chemo day and at least 2/3 days after. My protocol was on the day of chemo, I would also get infused with anti-nausea and acid-reducers. Sometimes also fluids. Then, for 2 days after would get infused with the anti-nausea, acid-reducers and fluids! Once, I missed the support meds and was EXTREMELY SICK!!! Never again.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  8. 8
    almost 5 years ago
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    Hot flashes

    Side Effects

    OMG I am really getting tired of all of the hot flashes!!!!

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  9. 9
    almost 5 years ago
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    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  10. 10
    almost 5 years ago
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    Other Care

    This person has yet to add any details about this experience.

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  11. 11
    almost 5 years ago
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    PET Scan

    Celebration

    YAY!!! PET SCAN CAME BACK NEGATIVE AND BLOOD WORK IS GROWING AND STABILIZING!

    2 Comments