TKRash's Journey:

  1. 1 Symptoms Icon Symptoms
  2. 2 Symptoms Icon Symptoms
  3. 3 Symptoms Icon Symptoms
  4. 4 Milestones Icon Milestones
  5. 5 Oh No Icon Oh No
  6. 6 Oh No Icon Oh No
  7. 7 Oh No Icon Oh No
  8. 8 Drug Therapy or Medication Icon Drug Therapy or Medication
  9. 9 Drug Therapy or Medication Icon Drug Therapy or Medication
  10. 10 Drug Therapy or Medication Icon Drug Therapy or Medication
  11. 11 Drug Therapy or Medication Icon Drug Therapy or Medication
  12. 12 Procedure or Surgery Icon Procedure or Surgery
  13. 13 Procedure or Surgery Icon Procedure or Surgery
  14. 14 Clinical Trial Icon Clinical Trial
    ???
  15. 15 Side Effects Icon Side Effects
  16. 16 Side Effects Icon Side Effects
  17. 17 Side Effects Icon Side Effects
  18. 18 Side Effects Icon Side Effects
  19. 19 Side Effects Icon Side Effects
  20. 20 Side Effects Icon Side Effects
  21. 21 Side Effects Icon Side Effects
  22. 22 Side Effects Icon Side Effects
  23. 23 Side Effects Icon Side Effects
  24. 24 Side Effects Icon Side Effects
  25. 25 Side Effects Icon Side Effects
  26. 26 Side Effects Icon Side Effects
  27. 27 Side Effects Icon Side Effects
  28. 28 Decision Point Icon Decision Point
  29. 29 Decision Point Icon Decision Point
  30. 30 Other Care Icon Other Care
    ???
  31. 31 Drug Therapy or Medication Icon Drug Therapy or Medication
    ???
  32. 32 Symptom Management Icon Symptom Management
  33. 33 Symptom Management Icon Symptom Management
  34. 34 Symptom Management Icon Symptom Management
  35. 35 Symptom Management Icon Symptom Management
  36. 36 Symptom Management Icon Symptom Management

Patient: Systemic Lupus Erythematosus

Patient Info: Diagnosed: almost 28 years ago, Female, Age: 51

  1. 1
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Fatigue

    Symptoms

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Bone pain

    Symptoms

    This person has yet to add any details about this experience.

    0 Comments
  3. 3
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Pain in muscles

    Symptoms

    This person has yet to add any details about this experience.

    0 Comments
  4. 4
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
  5. 5
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Problem with doctor

    Oh No

    Dr. came in said I had lupus and was going to be dead in less than 2 years and to make my funeral arrangements, This was the same day my youngest baby turned 1

    1 Comment
  7. 7
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Relationship issues

    Oh No

    Husband couldn't deal with it so he filed for divorce

    0 Comments
  8. 8
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Deltasone (prednisone)

    Drug Therapy or Medication

    This person has yet to add any details about this experience.

    0 Comments
  9. 9
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Deltasone (prednisone)

    Drug Therapy or Medication

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Imuran (azathioprine)

    Drug Therapy or Medication

    This person has yet to add any details about this experience.

    0 Comments
  11. 11
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Bentysta

    Drug Therapy or Medication

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Lumbar puncture

    Procedure or Surgery

    I was hard to numb

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  13. 13
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Tissue biopsy

    Procedure or Surgery

    hard to numb, was deeper than the Dr thought and I lost a lot of blood and nearly died

    Went as Expected: Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  14. 14
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  15. 15
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Arthritis

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  16. 16
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Diarrhea

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  17. 17
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Headache

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  18. 18
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Mood swings

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  19. 19
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Increased appetite

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  20. 20
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Nausea

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  21. 21
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Puffy face

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  22. 22
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Tremors

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  23. 23
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Trouble sleeping

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  24. 24
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Trouble sleeping

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  25. 25
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Vomiting

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  26. 26
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Weakened bones

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  27. 27
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Weight gain

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  28. 28
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    there have been times that I have wanted to take my life just to make the pain stop

    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  29. 29
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    I was at a crossroads i wasn't sure whether to give up and die or fight for my life. I decided to fight

    Decision Point

    This person has yet to add any details about this experience.

    1 Comment
  30. 30
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  31. 31
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Drug Therapy or Medication

    This person has yet to add any details about this experience.

    0 Comments
  32. 32
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Assistive device

    Symptom Management

    This person has yet to add any details about this experience.

    0 Comments
  33. 33
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Corticosteroids

    Symptom Management

    This person has yet to add any details about this experience.

    0 Comments
  34. 34
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Physical therapy

    Symptom Management

    This person has yet to add any details about this experience.

    0 Comments
  35. 35
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    Self-care technique

    Symptom Management

    This person has yet to add any details about this experience.

    0 Comments
  36. 36
    • TKRash
    • Experience with Systemic Lupus Erythema...
    over 2 years ago
    TKRash's Avatar

    essential oils, muscle rubs, hot baths with Epsom salts

    Symptom Management

    This person has yet to add any details about this experience.

    0 Comments